← Return to CRPS - anyone suffering with complex regional pain syndrome

Discussion
Comment receiving replies
@leigh17

I am so sorry this is happening, I know there are a few others on here with this. Not sure if this will help but I know that the we have an immunologist here in Naples that treats this with IVIG infusions…not sure the outcomes but it could possible be am option if you can find one in your area. I am suffering from small nerve fiber neuropathy which is incredibly painful and I am seeing an integrative pain management doctor and also having tons of tests to find out the cause, it too is extremely painful. I have an appointment with immunologist but not until October which is crazy. Hoping this might be help on those tread…

Take care…

Jump to this post


Replies to "I am so sorry this is happening, I know there are a few others on here..."

Hi and to all my friends in pain…… I SAY PLEASE ADD A FEW WORDS thru out the day TO PRAYER.
Seek and you will should find. Oooh yeea.
Please excuse me if intruding here. Am only telling all of us pray to whom you like BUT do it ok.

BY prayers I know, I have come to know you all here at MAYO CLINIC.
How?
BY A FRIEND IN CONVERSATION AS I WAS IN MY OWN BUSS
PREOCCUPIED DID NOT BRING MY PAIN PILLS.

Well, here I am. Been 4 months y'all.
I have done more lately with everyone's comments than in my 14 yrs with this P. N ON THE FEET BOTH, NOW ON HANDS.
AND WORSENING.

J bisshop has provided a lot and thru his comments, have done a few other things not one of my NEOROS/ PAIN MNG/ And or PRIMARY DRs have even suggested I do even on my own personal “RISK” ...

THE IVS DID NOT DO A THING FOR ME. Nor the injections. Also very expensive. Make sure the INSURANCE IS COVERING. Mine did not $68K in question now.

Bye now