← Return to Mesenteric Panniculitis or Sclerosing Mesenteritis

Discussion

Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: 5 days ago | Replies (1507)

Comment receiving replies
@nedradenise

Does anyone have this rare inflammatory disease? If so how do you deal with the pain and still function every day? I would love some advice.

Thank you

Jump to this post


Replies to "Does anyone have this rare inflammatory disease? If so how do you deal with the pain..."

Good morning, @nedradenise, I found several members of the Connect community who share your disease and posted links to the discussions below. Also, you can type mesenteric panniculitis into the search window on top of the Connect page which will bring up a number of individual discussions for you.

https://connect.mayoclinic.org/discussion/mesenteric-panniculitis-or-schlerosing-mesentertis-auto-immune-around-small-intestine/https://connect.mayoclinic.org/discussion/is-there-a-cure-for-mesenteric-panniculitis-my-mother-just-been-diagnosed/https://connect.mayoclinic.org/discussion/diet-and-mesenteric-panniculitis/

The National Organization for Rare Disorders has more information on Mesenteric Panniculitis here:
https://rarediseases.org/rare-diseases/mesenteric-panniculitis/

Are you currently on any treatment for this?

Hi Denise,
I'd like to add my welcome. @loribmt provided links to discussions in the Digestive Health group (https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/) related to mesenteric panniculitis.

I moved your message to the main MP discussion that @billymac65 started years ago and is still going strong today. See here:

- Mesenteric Panniculitis or Sclerosing Mesenteritis https://connect.mayoclinic.org/discussion/mesenteric-panniculitis-or-schlerosing-mesentertis-auto-immune-around-small-intestine/

I did this so you can easily connect with active members like @dwholey @erincorn @lobell2 @lauraharris111 @lisacw @gallosusie1 @mom2three @ellenos @royal @kimh @nancykeenan and so many more.

@nedradenise, is this a new diagnosis for you?

Hello I have this condition the way I deal with the pain is raking Turmeric
I also changed my diet to only eating anti inflammotory foods. No Caffeine
Beef in moderation
Pork in moderation
I mainly eat chicken and turkey.
No sugar.

A gluten free diet can help also.

Starches I only eat brown rice and if potatoes a small portion.

Whole grain cereals
Beans are great to I have done alot of research. Changing my diet and taking Turmeric has helped alot

Anti inflammatory is the key to keeping this rare disease at bay.
eating junk food and stress Causes flares as well as eating sugar and drinking sodas.

The antinflammatory diet also helps to stay regular.

Im all about natural I only take medicine when needed.

Hope this helps