I was googling some of Bill's symptoms and so many of them go along with Lewy's dementia. The acting out his dreams (at times I have had to use a separate bedroom as they got so violent); hearing music and voices that aren't there. Hearting doctor said it was musical tinnitus but I'm not so sure.
At the moment they have just started testing him - also to set up appointments for CKD (kidney) and Urinary problem.
Day to day trying to figure out what to expect - other than the unexpected lol.

We caregivers and doctors search medications and therapies because what works for one doesn’t always work for another. I didn’t realize how much information there is for us to find and suggest. We all do our part to try everything we can to help our loved ones, including the doctors, because Dementia is so complicated, therefore various therapies and medications are tried. I’m almost ready to ask Will if he would go into a research program for Dementia and maybe find out what works for Will. Has anyone else thought about a research program? But first, I want to be sure he has taken every test out there for an accurate diagnosis and go from there.
With his shortness of breath, we have a PFT and oxygen assessment tests set up for July 18th.
His doctor said medications for Alzheimer’s does help with Dementia. I have to find out how we can get those medications for Alzheimer’s if he hasn’t had that diagnosis.