← Return to CRPS - anyone suffering with complex regional pain syndrome

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@grannyzoo

I was just looking online at the Cleveland clinic. Apparently they have recently taken five new different approaches to CRPS. They are approximately two hours from Pittsburgh but it might be a spot that you would want to check into. I would check with their “nurse on call” and go from there. They could possibly give you the name of someone in Pittsburgh area that could help you. The other thing that I did, and it just might have been a stroke of luck, was I contacted the Mayo clinic in Jacksonville, Florida. I asked to speak with someone knowledgeable of CRPS. (I was desperate!) They are the ones that directed me to my physician at the University of North Carolina. Take a shot and give them a phone call and ask them if they know if anyone up in the Pittsburgh area that could guide you. What have you got to lose? I wish you the best of luck! This disease is nasty. My prayer for you is that you get as lucky as I have with my spinal cord implant! The key thing I learned was I needed an anesthesiologist that specializes in pain management. Don’t forget you have AGH. They are excellent, too! (Obviously, I’m originally from Pittsburgh and Cleveland. I’d start with UPMC and AGH. If all else fails move to Raleigh, NC! 😁)

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Thank's for your continual suggestions and prayers. I will follow up. Thank's again! Darryl