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Small Fiber Neuropathy biopsy test results
Neuropathy | Last Active: Feb 15 2:46pm | Replies (36)Comment receiving replies
@mloren I have idiopathic SFN and also experience tachycardia. I understand how it can be scary and worrisome. Turns out I also have autonomic dysfunction and POTS (postural orthostatic tachycardia syndrome). All of these things are related and were diagnosed by my neurologist through lots of testing. Based on your comments above about your tachycardia, I wonder if you have POTS also. I took a beta blocker for awhile but didn’t notice any improvement, only side effects, so I stopped. I’m working with a cardiac rehabilitation doctor at Mayo and that’s truly been the best “treatment” so far. I haven’t found any medication to help the SFN/Autonomic Dysfunction/POTS and experience widespread pain, tachycardia, headaches, pins and needles, shooting pains, fatigue, etc. everyday. The cardiac rehab doctor works with me on exercises that are appropriate for my conditions and it really is helpful, motivating and overall, puts me in a better head space, helping my mental health too. Being in constant pain everyday takes its toll so it’s important for me to focus on mental wellness too.
I just wanted to share some of my story with you, as I see similarities and I know the tachycardia can be scary. I hope you find answers and solutions/treatments that work for you!
Wishing you well,
Robyn
Replies to "@mloren I have idiopathic SFN and also experience tachycardia. I understand how it can be scary..."
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Hi Robyn, I appreciate your sharing very much. I know for sure I don't have POTS. I have had a lot of bloodwork to rule out autoimmune diseases and heavy metals, I also had a genetics test and nothing. I had no symptoms of anything. The tests were negative except for the skin biopsy. The all over pin pricks were it. I have had palpitations since I was younger and they were not a big deal until now. I remember the day well when I woke up and I had a funny feeling in my chest. I thought my it was my palpitations acting up in a weird way. No symptoms but the funny feeling. So I made an appt. for my cardiologist. I had Echo and Stress Test and those were normal. But the holter monitor showed lots of stuff. I had lots of PSVC's, PVC's, couplets, bigeminy, trigeminy. I would like to get an appt. to Mayo but I don't think they will take me. Question: How hard was it for you to get into Mayo? I called and asked about getting an appt. and they told me I have to have a referral from a Dr. but that doesn't guarantee me an appt. It is somewhat mysterious so I wonder what comes next. I don't like taking the metoprolol but if it keeps my heart rate good I am okay with it for now. Thank you so much for your response. Keep in touch with us here. I wish you well also.