1. < Digestive Health

Fever of unknown origin

Posted by football4ever @football4ever, Jul 1, 2022

Been to every kind of specialist . Last specialist was hematology oncology. No cancers but abnormal tests results are a mystery . Have fevers everyday ranging from 100.00 to 103. Severe weakness and fatigue mostly bed ridden because of the weakness . Have low phosphorus as well....no one knows what to do!!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 1, 2022

Welcome @football4ever. Oh, I can't sense your frustration and despair. It is so confusing when the cause cannot be found and you're on a long road of investigation.

Here's an article that lists possible causes
- Causes and treatment of a persistent low grade fever https://www.medicalnewstoday.com/articles/326175

I'm glad to hear cancer has been ruled out. I assume that infection of any kind has been ruled out as that is the most likely culprit. Do you have other existing conditions that may be contribute to the fevers? Did this start suddenly? Have you been traveling recently?

So many questions. I'm sure your doctors asked you all the same ones. I noticed that you posted your question in the Digestive Health group. Are they suspecting a GI-related cause now?

REPLY
football4ever | @football4ever | Jul 1, 2022

I have fibromyalgia nash hashimotos asthma alot of allergies. These new symptoms as far as nausea fevers extreme fatigue to point of feeling like I'm going to pass out started last fall. I actually had a bad fall just out of no where I fell in driveway ended up in ER with 3rd degree ankle sprain severe abrasions. I have no infections been to infectious disease Dr as well. I wrote to to GI department cause I thought maybe they've has the only explanation however primary Dr has said fevers are not caused by liver issues. I'm bed ridden from this as I'm so tired and weak . Thanks for the site info I will be sure and look at it . I do have abnormal blood tests like high ldh reticulocyte crp among others that seem to point to RA Lupus as examples but rheumatologist which I've not seen cause at the time I saw him was few years ago . I feel I need to be admitted but ER never seems to agree. What does it take to get admitted I would think fever and not being able to get out of bed would be enough concern but I guess not . I've had fibromyalgia since 06 . Hope the extra info is helpful. Thanks again

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Ingegerd Enscoe, Alumni Mentor | @astaingegerdm | Jul 2, 2022

@football4ever -
I understand that you want to be admitted to the hospital with the high fevers and severe weakness. However, times have changed since years ago when it was routine to admit to the hospital to find out what causes the fever and other symptoms.
Unless someone is acutely I’ll with a severe illness, such as pneumonia, all work up is done as an outpatient.
It’s exhausting for you to coordinate this alone- does your primary doctor plan your testing and referrals?
With Hashimotos, asthma and other allergies you could most likely be dealing with an autoimmune illness.
Did the hematologist explain why you have a high retic count? It means that you are actively producing new red blood cells due to early destruction of old ones. The destruction process could be part of an autoimmune illness, also cause the elevated LDH level.
I’m just thinking here with what knowledge I have, not diagnosing.
You have not seen a rheumatologist for years- was that when you were diagnosed with fibromyalgia?
Since so much is happening to you now that points to autoimmune illness , it would be a good idea to make another appointment with a rheumatologist.
Does this sound like a good plan for you?

REPLY
2 replies
football4ever | @football4ever | Jul 2, 2022
In reply to @astaingegerdm "@football4ever - I understand that you want to be admitted to the hospital with the high..." + (show)
@astaingegerdm

@football4ever -
I understand that you want to be admitted to the hospital with the high fevers and severe weakness. However, times have changed since years ago when it was routine to admit to the hospital to find out what causes the fever and other symptoms.
Unless someone is acutely I’ll with a severe illness, such as pneumonia, all work up is done as an outpatient.
It’s exhausting for you to coordinate this alone- does your primary doctor plan your testing and referrals?
With Hashimotos, asthma and other allergies you could most likely be dealing with an autoimmune illness.
Did the hematologist explain why you have a high retic count? It means that you are actively producing new red blood cells due to early destruction of old ones. The destruction process could be part of an autoimmune illness, also cause the elevated LDH level.
I’m just thinking here with what knowledge I have, not diagnosing.
You have not seen a rheumatologist for years- was that when you were diagnosed with fibromyalgia?
Since so much is happening to you now that points to autoimmune illness , it would be a good idea to make another appointment with a rheumatologist.
Does this sound like a good plan for you?

Jump to this post

Yes thank you! It makes sense . My primary does all the referrals etc. Thank you again . It's at least something still to try and hope for a answer ...maybe ! Thanks again

REPLY
dsg | @dsg | Jul 3, 2022
In reply to @astaingegerdm "@football4ever - I understand that you want to be admitted to the hospital with the high..." + (show)
@astaingegerdm

@football4ever -
I understand that you want to be admitted to the hospital with the high fevers and severe weakness. However, times have changed since years ago when it was routine to admit to the hospital to find out what causes the fever and other symptoms.
Unless someone is acutely I’ll with a severe illness, such as pneumonia, all work up is done as an outpatient.
It’s exhausting for you to coordinate this alone- does your primary doctor plan your testing and referrals?
With Hashimotos, asthma and other allergies you could most likely be dealing with an autoimmune illness.
Did the hematologist explain why you have a high retic count? It means that you are actively producing new red blood cells due to early destruction of old ones. The destruction process could be part of an autoimmune illness, also cause the elevated LDH level.
I’m just thinking here with what knowledge I have, not diagnosing.
You have not seen a rheumatologist for years- was that when you were diagnosed with fibromyalgia?
Since so much is happening to you now that points to autoimmune illness , it would be a good idea to make another appointment with a rheumatologist.
Does this sound like a good plan for you?

Jump to this post

Have you been checked for cancer?

REPLY
1 reply
linh | @linh | Jul 3, 2022

My physiology instructor told my class when troubleshooting first start with examining medications. Among this instructors other recommendations was to take bee pollen so I ran out got some. Guess what I developed a low grade fever. I didn't follow his first advice and make the connection. A work colleague told me she thought I had AIDs. I finally stopped the bee pollen and my 100+ degree temperature immediately went away. It is said to be helpful to keep a careful food, medicine and symptom diary to assist in sorting problems out. Don't forget like I did to examine your medications, and all supplements very carefully (and their interactions) if you haven't already.

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andrea21 | @andrea21 | Jul 3, 2022

Things to rule out would be sleep apnea (this way my issue. I was sleeping 23 hours/day for about a year), depression, anemias (iron, B 12, Vit E). Iron deficiency anemia was also my issue. I wish you well and may you find your answer soon.

REPLY
football4ever | @football4ever | Jul 4, 2022
In reply to @dsg "Have you been checked for cancer?" + (show)
@dsg

Have you been checked for cancer?

Jump to this post

Yes just had bone marrow biopsy and a bunch of blood tests at hematology oncology all negative except the abnormal ones that point to autoimmune as Lupus . I've researched the abnormal blood tests and they point to lupus . As well as the other symptoms I have .

REPLY
laneyh | @laneyh | Jul 5, 2022

I get fevers and joint pain when in flares for colitis. Do you have stomach/ bowel issues?

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