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Small Fiber Neuropathy biopsy test results
Neuropathy | Last Active: Feb 15 2:46pm | Replies (36)Comment receiving replies
Joanne, I went back and read my biopsy result for SNF. It said that occasionally patients can feel symptoms in the hands first before the lower extremities. I had read elsewhere that length dependent normally starts in the lower extremities and then goes upward. My results also stated that I was not charged for the specimen processing that didn't produce a result. Meaning the one on my lower leg. I have non length dependent SFN. Two days after retiring from my job I woke up with full onset of pinpricks all over. My eyes, face, head arms legs back. All over. If you have ever watched fireflies at night when they light up it reminds me of that. Just one prick right after the other going off. Mine is idiopathic. I didn't have any symptoms of anything so they tested me but nothing came back. I did notice in my left hand from the wrist down to the area between my little and ring finger I had a burning sensation that would come and go all throughout the day. That part has gone away for now. But I have noticed at times that I will have shooting pains in certain areas that will be like across an area of my skin then shooting down. Some of those can be very zap like and sharp. I take alpha lipoic acid daily. I still get the pin pricks whenever they decide to do their thing. They come whenever. Some of the pricks last longer than others. The SNF has affected my heart and it caused my heart rate to accelerate as high as 183 so I take medication for that. I have been taking metoprolol for that and it works but on June 5, I was watching TV and I noticed the same feeling in my chest when it happened before. So I took my heart rate and it only went up to 97 so I took some med. I am now going to have another holter monitor put on this week.
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If Alpha lipoic acid helped some switch to
R lipoic acid read up on it as it is more available in blood also try Mega Benfototiamine. I get both products from Life Extension A very good company
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Hi mlorena,
Thank you for sharing what you have experienced with non length dependent sfn, I have been researching, trying to understand just what the symptoms for this are. It must be very disconcerting to have your Heart effected in this way! I also noted the comment on my lab report regarding hands versus feet, as my hands were the first place I noticed, and have developed right along with my feet. But I also have zips, zaps, shooting pain, painful skin, and a lot of itching in other areas of my body. My hands and feet are progressively more and more stiff too, I have no idea if this can be from SFN, but it has developed in tandem with my sfn symptoms. My neuro office has ordered a lumbar MRI to rule out any nerve impingements as possible cause of symptoms in legs, esp right leg. I don't expect them to find much. I am having trouble with Summer heat, as I did last Summer for the first time, I seem to struggle with extremes of temperature, both cold and hot. I am sweating on my torso, and arms, much more than ever before, and experience light headedness. In the Winter it is the opposite, I am cold, especially my feet! The skin biopsy on my foot was low normal, they consider this to be positive, but above my ankle was normal, they did not do one on my thigh. I have had strange ongoing problems due to the skin biopsy which I understand is highly unusual. When I see the neuro, after the MRI next week, I think I will ask about non length dependent sfn. I do feel nervous about having another skin biopsy as I do not want ongoing nerve reactions in more than one location. I appreciate having a place to communicate about this mystifying problem, I have been diligently trying to discover what is happening with my body, for 2 years now, the sfn is the first result I have gotten so far.