@dustymi11er I’m so glad to hear from you again, and you’re sounding more positive to boot. Couple of things for you to do/remember: 1. what dose of steroids are you on? A BIG side effect of high dose steroids is osteoporosis (a thinning of the bones). I developed it after approximately 2 months of medium to high dose steroids. Ask your doctors for a DEXA scan which is a specialized x-ray to look at the health of bones. There is a class of drugs, called bisphosphamates, which can help protect the bones. You want to ask for a prescription. And keep up the walking! 2. Learn as much as you can about clippers so you can have discussions with your doctor. And, don’t be afraid to ask questions and advocate for yourself.
3. Keep a notebook of every doctor’s visit and test. This becomes a great reference tool!
Too many suggestions for you? I know you can do it! Keep me posted