← Return to PMR initial diagnosis: Can there be an underlying disease?

Discussion

PMR initial diagnosis: Can there be an underlying disease?

Polymyalgia Rheumatica (PMR) | Last Active: Jul 4, 2022 | Replies (49)
Comment receiving replies
@ajf

PMR is a sneaky culprit. I have been on 8 mg of methylprednisolone for over a year now. Every once in a while out of nowhere I get a debilitating flare and I have to bump my dose up for a few days, usually to 12mg. Then drop back to 8mg. In a day or two. Every 3 or 4 months I try to ween off 2mg but within a week I have to go back to 8mg. This disease is relentless if nothing else.

Jump to this post

Replies to "PMR is a sneaky culprit. I have been on 8 mg of methylprednisolone for over a..."
jfannarbor | @jfannarbor | Jul 3, 2022

I have had PMR off and on for 30 years. Do you ever wonder why there is so little understanding of the cause of this disease? I feel that since it doesn't kill you the doctors don't get too concerned. Another question is since most PMR patients are on some form of prednisone we would have a better understanding of what the long-term effects of prednisone are at low doses. I have been on 2.5 mg of pd for about 10 years. Due to acute treatment of another condition I know what higher doses of pd make me feel much better.

VIEW AND REPLY