Hello, @dustymi11er . I”m so glad you found Mayo Clinic Connect. Clippers is a frightening diagnosis to receive, so I understand you feeling petrified. I was diagnosed 4 1/2 years ago and I had a really difficult start. I was on high-dose steroids but am now tapering off in favor of a drug that suppresses the immune system but without the bad side effects of steroids. My brain has been free of ‘lesions’ for over a year now, but i have to take the drugs forever. 🙁
I do have an article on Rituxan which i received twice. It’s a wonderful drug but it stopped working for me. Then i had 8 cycles of cytoxan (cyclophosphamide, a chemotherapy drug). As soon as it worked, i went onto Mycophenolate mofitil, the immune suppressant. It’s been a long road, but….. I’m getting better
I’m going to ask a few members, who have also said they have Clippers, and see what info they have. @janegm. @balangan111 @movingtomadison @ninamichelle @sweetpeanutbunny and @astanko
How are you doing now?