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Questioning my diagnosis of PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jul 1, 2022 | Replies (18)

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@floridabonnie

It is so hard to remember back a year ago, I remember pain in my joints and had MRI"s done because I have had degenerative disc disease for many years and it usually means a herniated disc. I have had 5 surgeries on my spine from the discs going. All of the MRI's were fine, no herniation to cause what was happening. Along with the pain, was an inability to lift my legs or lift my body out of a chair. I am usually a very active person. I swim regularly, go to the gym 2-3 times a week and do the circuit machines along with going 3 miles on the treadmill. That was a normal thing for me along with mowing my own lawn and maintaining my pool and my home. Now I get tired walking around the block. My legs get a hard to move feeling in them, but the pain is not there. I am so confused. I have never in my life felt like this, and I remember when I first started the prednisone, at 25 or 30 mg a day, I felt more energized and pain free. Now the pain is gone, except in my neck and shoulders, but my legs are getting heavy feeling. I am 5'8" and weigh 139, so I am not "heavy", but I feel it. I got down to 1 or 2 mg per day, and the feeling of tiredness and heaviness grew. It is definately a new feeling and not a good one.

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Replies to "It is so hard to remember back a year ago, I remember pain in my joints..."

I would suggest talking to your doctor about increasing the prednisone. 2 mg is quite a low dose. I've had PMR about the same length of time as you and the lowest I got was 6 mg. I'm on 10 mg now and doing well but soon to see the doctor and probably start the taper again. Like you I was very active, able to hike and bike uphill, do my yard work and home maintenance. I can do those things now, just not as much, as far or as fast. When I was on lower doses there was pain, but it was fatigue and overall poor function and quality of life that caused me to call the doctor and get back on a higher dose.