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Questioning my diagnosis of PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jul 1, 2022 | Replies (18)

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@linda7

When I get a new symptom I ask myself if I had anything like that before I got PMR. Is this weakness and heaviness new for you? If so it is likely related to PMR. Feeling worse every day does not sound good. Both times that I got a flare it was pain and symptoms that got worse rather than better with time on the same prednisone dose. I do not change dosage without consulting my rheumatologist. I'm the expert on my body but he has knowledge and experience that I do not have.

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Replies to "When I get a new symptom I ask myself if I had anything like that before..."

It is so hard to remember back a year ago, I remember pain in my joints and had MRI"s done because I have had degenerative disc disease for many years and it usually means a herniated disc. I have had 5 surgeries on my spine from the discs going. All of the MRI's were fine, no herniation to cause what was happening. Along with the pain, was an inability to lift my legs or lift my body out of a chair. I am usually a very active person. I swim regularly, go to the gym 2-3 times a week and do the circuit machines along with going 3 miles on the treadmill. That was a normal thing for me along with mowing my own lawn and maintaining my pool and my home. Now I get tired walking around the block. My legs get a hard to move feeling in them, but the pain is not there. I am so confused. I have never in my life felt like this, and I remember when I first started the prednisone, at 25 or 30 mg a day, I felt more energized and pain free. Now the pain is gone, except in my neck and shoulders, but my legs are getting heavy feeling. I am 5'8" and weigh 139, so I am not "heavy", but I feel it. I got down to 1 or 2 mg per day, and the feeling of tiredness and heaviness grew. It is definately a new feeling and not a good one.