Thanks for your insight @astaingegerdm. How old is your son now, and is he better?

We actually did see ID at the beginning of June. She thinks there is likely something non-infectious happening. We had a follow-up yesterday and they are going to do some investigation and get back to us. The most important thing right now is symptom management - he is in constant pain and discomfort and so far we have not been able to lessen any of it. She wants to see if the post Covid clinic or post Lyme clinic will see him to assist with symptom management as what he is experiencing is very similar to both of these.

I do not think they tested for EBV . We are in Canada and not much gets ordered outside of the norm. I really had to push for the Lyme test.

GI did see us the other day and gave a diagnosis of post infectious IBS. I am not convinced as he does not fit the diagnostic criteria. The only symptom he has is nausea. He mentioned we have seen a lot of people and at some point you just have to stop and draw the line. I kind of feel that he was just throwing a diagnosis at us that was kind of benign. He said treatment was reassurance, peppermint oil pills, regular bowel movements and mindfulness.

We are waiting on results of a stool sample we did through a naturopath that tests for viruses, bacteria, and parasites.

Next steps are waiting for our rheumatology appointment and trying to have a “normal ish” summer.

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