← Return to Dilated pancreatic duct: Should I get a second opinion?

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@frances007

Thank you for asking. 2 years ago I began complaining of upper abdominal pain and loss of appetite that had been ongoing for about 8 months. I also mentioned to him that I had a lot of itching, which my doctor thought was a reaction to the Bentyl I take for IBS. My PCP dismissed my complaints and said it was acid reflux. During COVID-19 I went to urgent care for a COVID-19 test and mentioned to the physician the upper ab pain. By the grace of god, he ordered an ultrasound that revealed a dilated liver duct. My PCP called and said he had good news and bad news. The findings were not good, but they were going to monitor my problem. During the past 2 years I have had so many diagnostic tests that I have lost count. The most recent ultrasound revealed dilation of both my liver and pancreatic duct, which in my mind tells me the problem is not getting any better. My gastroenterologist discussed scoping with me, reminding me there was a 50% success rate and that the MCRP would be the best way to determine what was going on. He said he could not rule out a mass, even though I have had 2 CT scans. As I have mentioned, I have an interstim device to help me urinate; in order to have the MRI I had surgery a week ago to remove and replace this device with one that will now allow the MRI which is being scheduled. I take Norco for pain and that helps. I recently tapered off Methadone because the gastroenterologist said there was a correlation between opiates and dilation of bile/pancreatic ducts. I suffer from chronic pain as a result of a very bad car accident 9 years ago. I have been on opiates a very long time, starting with fentynal patches, and then changing to methadone because of the Medicare "donut hole." I recently found a doctor in San Francisco who is doing a study related to my condition, and asked my PCP for a referral, which I will secure. It has been a slow, painful and frustrating process. I asked my PCP for a referral to a different gastoenterologist, but he would not give me one. I recently changed to a new PCP and will obtain a referral to a new doctor as I want a fresh set of eyes to look at my condition. While I have always been on the low side as far as weight, having lost over 15 pounds since March of this year concerns me. I have no appetite, take phenergan for frequent nausea and now beginning to feel much weaker than I have ever felt. I am very active, but now seem to be slowing down. My PCP mentioned to me a few days ago that I had a low red blood cell count, but did not want me to take an iron supplement, contradicting what the stomach doctor suggested. In any event, I will move forward with the testing and obtain new referrals etc. I thank you for your concern. I recently exchanged messages with my OB/GYN who said she wished that doctors could go back to "slow medicine" focusing more on the individual, as that is what patients want. I do not see that happening at Sutter Medical Foundation where I have been a patient for over 30 years.

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Replies to "Thank you for asking. 2 years ago I began complaining of upper abdominal pain and loss..."

Here is the most recent CT scan. Perhaps I am overthinking these issues; however, I'm not a doctor and at this point unable to rely on my treating physicians to explain anything to me, other than the fact they want more studies.

TECHNIQUE: Transverse and sagittal transabdominal sonograms of the upper abdomen, aorta and IVC were performed in conjunction with color Doppler.

FINDINGS:
Liver: 16.4 cm liver is homogeneous without focal mass. There is persistent moderate intrahepatic biliary ductal dilatation

CBD: Measures 11 mm without obvious choledocholithiasis or biliary ductal mass. Common bile duct measures 13 mm in December 2020.

Gallbladder: Nondistended without stone, inflammation, or tenderness

Spleen: Homogeneous, without focal mass or enlargement. Spleen is 8.0 cm in length.

Pancreas: Visualized portions of the pancreas are grossly unremarkable except for moderate dilatation of the main pancreatic duct to 2.3 mm without obvious pancreatic mass, intraductal nodule or stone.

Kidneys: Right kidney measures 9.0 x 3.9 x 3.4 cm with 7 mm cortex, while the left is 8.9 x 3.6 x 5.2 cm with 14 mm cortex. There is no definite hydronephrosis, abnormal soft tissue mass, or stone in either kidney.

Miscellaneous: Aorta, inferior vena cava, and main portal vein are normal in caliber and direction of flow. There is no definite ascites or significant pleural effusion.