Connect
← Return to Damage to legs from Henoch-Schonlein purpura? Stumped the doctors
Discussion
Damage to legs from Henoch-Schonlein purpura? Stumped the doctors
Autoimmune Diseases | Last Active: Feb 7 8:21pm | Replies (47)Comment receiving replies
Good evening,
I am 83 years old, male, Italian, married with three children and granddaughter.
In 2012 I had autoimmune disease Schonlein-Henoch Purpura IGA with kidney, heart, intestinal, epidermal and muscle problems.
Doctors recognized the disease after several months of hospitalization.
I was treated with immunosuppressants, now discontinued, and cortisone.
Currently the disease is in remission.
I still work because I have a small laboratory that designs and builds pneumatic automations and it is my hobby.
My problem is as follows: I am always very tired with pain in my knees, clouded mind and loss of balance.
All my tests are in normal.
All the medical specialists consulted could not give an answer.
Can anyone help me?
Sorry for my bad english
Tanks
Roberto
Replies to "Good evening, I am 83 years old, male, Italian, married with three children and granddaughter. In..."
@radicchi I”m so sorry for all the confusion about what’s going on with you. Have you been able to see the specialists who treated you in 2012? You said all your tests came back normal, did this include tests on your kidney function? Also, are you using anything new in your lab that could affect you?
I wish i knew how to answer you or what to tell you. I think the best direction for you to take, is to continue to advocate for yourself and ask doctors what’s wrong.
Connect
@radicchi, your English is beautiful. I have moved your message to this discussion that @jsimmons74 started about Henoch-Schonlein purpura and her pursuit for answers about her son.
i'm glad to hear that the disease is currently in remission. But sorry that you continue to experience pain, cognitive issues and loss of balance. Have you considered working with a physio therapist for these issues?