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Questioning my diagnosis of PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jul 1, 2022 | Replies (18)

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@floridabonnie

I have had this PMR since 4/2021. I have been tapering down since October, but have noticed a heaviness in my whole body. When I get up to walk, it feels like my legs don't want to support me, especially through the hip, girdle area. I have no real pain except in my neck and knees at night. I am able to lift myself out of a chair, but not up off the floor if I get down with my young grandson. I have gone down to 2 mg a day, but am feeling worse every day. I am thinking of going back to 10 and see what that does. I hate this tired heavy feeling in my legs. Is this the PMR, or something else?? At 73 years old, you never know.

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Replies to "I have had this PMR since 4/2021. I have been tapering down since October, but have..."

When I get a new symptom I ask myself if I had anything like that before I got PMR. Is this weakness and heaviness new for you? If so it is likely related to PMR. Feeling worse every day does not sound good. Both times that I got a flare it was pain and symptoms that got worse rather than better with time on the same prednisone dose. I do not change dosage without consulting my rheumatologist. I'm the expert on my body but he has knowledge and experience that I do not have.