Mayo Clinic Pain Rehab Center (PRC) - What’s Your Experience?

Posted by robyn @boltz7555, May 13, 2022

Hello - my Mayo neurologist recently recommended the pain rehabilitation center (PRC) to me. They have scheduled my consultation for next week. I’m interested in hearing from others who have gone through this program. What was your experience?
@rwinney Hi Rachel - I had you in mind when I came to make this post and I found the helpful feedback and information you shared in a post from April, here: https://connect.mayoclinic.org/discussion/residential-chronic-pain-treatment-programs/
Did your condition impact your ability to work? If so, were you able to return to work with no special accommodations after PRC?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Rachel, Volunteer Mentor | @rwinney | Jun 30, 2022

In reply to @boltz7555 "@rwinney Hi Rachel- No worries, I lose track in these forums too! Believe it or not,..." + (show)

Which location?

robyn | @boltz7555 | Jun 30, 2022

Rachel, Volunteer Mentor | @rwinney | Jul 1, 2022

In reply to @boltz7555 "AZ" + (show)

@boltz7555
Hi there. How'd that new number work for you? Here is the AZ coordinators info in case you are not getting anywhere. I'm surprised to hear no one got back to you because everyone I've encountered at Mayo has been super helpful and prompt with communication.

Rachel Harris | Coordinator – Pain Rehabilitation Center | Mayo Clinic 5777 East Mayo Blvd Phoenix, AZ 85054 |Phone: 480-342-6240

Have your doctors faxed your medical records yet or are you still working on the insurance part?

robyn | @boltz7555 | Jul 1, 2022

In reply to @rwinney "@boltz7555 Hi there. How'd that new number work for you? Here is the AZ coordinators info..." + (show)

@rwinney I did not try that number yesterday. The day got away from me. Thank you for the information! The name I was given was Rachel, I’ll compare the numbers but will definitely get on that. Yes, all my other scheduling needs and communication has been amazing. I think with this one I just wasn’t getting to the right place. Mayo has all of my medical records and is my provider for most of my medical care. I’m very luck to have them right here! Thank you for going out of your way to get me that information! I’m going to call now! I really appreciate you!

robyn | @boltz7555 | Jul 1, 2022

In reply to @rwinney "@boltz7555 Hi there. How'd that new number work for you? Here is the AZ coordinators info..." + (show)

@rwinney I called and left a message! The voicemail clearly stated it’s PRC, so I know I’m in the right place now. Thanks again for the help!!

Rachel, Volunteer Mentor | @rwinney | Jul 1, 2022

In reply to @boltz7555 "@rwinney I called and left a message! The voicemail clearly stated it’s PRC, so I know..." + (show)

You're welcome.

Rachel, Volunteer Mentor | @rwinney | Aug 28, 2022

In reply to @boltz7555 "@rwinney I called and left a message! The voicemail clearly stated it’s PRC, so I know..." + (show)

@boltz7555 Hi Robyn, how have you been doing since we last connected? Have you made progress with the PRC?

alh123 | @alh123 | Aug 29, 2022

Hello,
I have empathy ! It’s confusing !
You’ll see my posts on this subject from earlier in the summer. I am waiting for my application reply as I finally got it all in a week ago.
Everybody is very pleasant but there is quite a lot to the application process …it may be my meds , but I found it confusing . I think it’s easy for people to remember that you are trying to do this while struggling just to get through a day applying to a program , that by definition, means you’re at the end of a long long journey .
3 CPRC sites plus all the therapeutic centres, the Mayo clinic is a huge bureaucracy . I think I contacted too many people, as I got confused. One source told me the point of entry was the Dr phoning the referral number and another wanted me to apply initially with the application forms .I did this , but then got delayed quite a while waiting for my Dr to return from summer holiday to do the referral . Wish I'd gone that route first, because nothing happens until they get the referral apparently .
It’s true then, that the first step to get things moving is to get your Dr to phone the referral in . ( let me know if you don’t have the number )
. Turns out they don’t have to do too much , most of the work is done by you….the forms and medical records. I found getting the records together the most difficult …figuring out which ones from 12 years of chronic pain and more than 25 therapies both physical and psychological . Not only trying to keep it from looking like an encyclopedia was a challenge , but getting it all through a scanner or fax machine without jamming ,was too. .In the end , I gave up and mailed it!! 🙁
Anyway , I’d be happy to help in any way I can …anything for another human trying cope with this illness .

samz0429 | @samz0429 | Aug 30, 2022

In reply to @rwinney "@boltz7555 Hi there. How'd that new number work for you? Here is the AZ coordinators info..." + (show)

Sorry to interrupt the message… I have chronic pain and would like to speak with a coordinator or counselor, from california. Thank you
Cindy

John, Volunteer Mentor | @johnbishop | Aug 30, 2022

In reply to @samz0429 "Sorry to interrupt the message… I have chronic pain and would like to speak with a..." + (show)

Hi Cindy @samz0429, Sorry to hear you have chronic pain. I just thought I'd mention Connect members are patients like yourself and there are no coordinators or counselors. Here is a list of specialists from US News & Health that might be helpful for locating one close to you.

-- California Pain Management Specialists: https://health.usnews.com/doctors/pain-management-specialists/california

Have you thought about seeking help at a teaching hospital or major health facility?