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PMR initial diagnosis: Can there be an underlying disease?
Polymyalgia Rheumatica (PMR) | Last Active: Jul 4, 2022 | Replies (49)Comment receiving replies
Thank you. I am back down to very little pain/discomfort/stiffness now - probably about a 2, which I can definitely live with. It was bad that first day then gradually got better. Took about 5 days. Wondering if that is just how PMR goes? I had been on the 10mg for about 2 weeks when I woke up hurting so badly again. Seems like the Pred was working at that level before that day then it wasn't...now it is. I am just trying to learn more about how this disease flows.
Replies to "Thank you. I am back down to very little pain/discomfort/stiffness now - probably about a 2,..."
Hi @hfoster, the proper dosage of prednisone is supposed to take care of the pain of PMR , in a way often described as miraculous. After suffering in a way similar to what @mild835 described for about a year, I started at a dosage of 12 mg but was quickly upped to 40 mg when I was found to have Giant Cell Arteritis, the evil sister of PMR. It's been a little over a year now with a couple of bumps in the road, but I'm down to 2.5 mg of prednisone. Did your doctor warn you about the symptoms of GCA? About 30% of those with PMR develop it, and untreated, it can cause blindness or stroke. I wish you the best.
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I'm not long at this, but I do find every day is different in some way...so I'm not so sure about a "flow". The Pred will make you feel all well again and then when you start to wean, you find out you are not miraculously healed. As far as the PMR goes, for myself, time will tell. Right now it's manageable, but weaning is the culprit. We're all on the same journey, maybe slightly different paths. All the best to you on yours. ~ Deb