CRPS - anyone suffering with complex regional pain syndrome

Absolutely! Everything started a year and a half ago with a orthopedic surgeon removing a couple of fibromas off of my right foot near the big toe pad. Apparently, he must’ve gotten too close to the medial plantar nerve and either nicked it or scar tissue built up around it so it threw off the communication of the nerve to my nervous system and that set off a cornucopia of bad things. About a month after the surgery I started really experiencing nerve pain in both feet and I also had five fibromas developing in my left foot almost instantaneously after the surgery which is very weird to both my podiatrist and myself. I’ve tried Tenex procedure which is a vibrating needle to remove the damaged tissue, I tried radiation and I’m also getting ready to try a medical grade 4 laser to try to heal my plantar fasciitis which also stemmed from the procedure a year and a half ago. Information, I’ve tried pretty much everything under the sun and I’ve also seen a neurologist, pain specialist (who tried to give me nerve blocks which did very little), two separate podiatrist one of which is a nerve specialist who wants to remove all of my fascia in both feet which I am a bit hesitant to do especially considering the fact that I am CRPS symptomatic. The one great thing about this, from what I understand CRPS pretty much involves 24 / 7 pain and I do not experience that which is definitely a God thing. I have intermittent pain and sometimes the pain is pretty severe but typically it settles down within a day or two. at the moment, I haven’t been able to walk for the last 2 1/2 months due to the tenex procedure and my feet are usually red, hot and swollen. I’m also a retired Air Force veteran with over 26 years in the service I really wish there was a program that I could attend at your hospital to help me but I highly doubt that’s the case. If it all possible, feel free to **send me a private message** and I’ll be more than happy to discuss this in detail. I’m gonna get through this, God‘s got me but I might be able to use your help 🙂

I inadvertently uploaded a photo of me drinking one of my brothers Health shakes which was really disgusting and I can’t seem to delete it from my post. Please disregard it or delete it for me or else I’m afraid nobody will take me seriously!

Hi @bobberoo, We deleted the photo of the health shake as requested. Also you will notice your telephone number was removed from your message above. We recommend not posting personal contact information in the public forum. You can use the secure private message function to exchange contact information with another member.

Understand 🙂 so how would I be able to get the information that I’ve posted so far to doctors who can make a difference with what I’ve gone through and what I need to do to get better?

Foot issues and CRPS symptoms:

I’ve had CRPS symptoms for over a year and it’s time I go somewhere to get treated and I’m not talking about just nerve blocks small device is inserted in the spine, I need to figure out where to go to get my nervous system re-balanced the Academy injections or lidocaine injections. Help please 🙂

Makes sense. Now I just need to figure out how I’m gonna do that with the mayo clinic so I guess I’ll be getting on the phone soon 🙂 thanks!

If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

Foot issues and CRPS symptoms:

I’ve had CRPS symptoms for over a year and it’s time I go somewhere to get treated and I’m not talking about just nerve blocks small device is inserted in the spine, I need to figure out where to go to get my nervous system re-balanced the Academy injections or lidocaine injections. Help please 🙂

Hello @bobberoo. Thank you for sharing more of your background with @sueinmn so that she and other members can provide you with support you are seeking!

Because there is an existing discussion on CRPS, you will notice that I have moved your post here: https://connect.mayoclinic.org/discussion/crps-anyone-suffering-with-chronic-repetative-pain-syndrome/

I've done this so that you may also connect with other members going through similar situations. Members such as @nursejudith @suecutuli and @grannyzoo may be able to join you as recent contributors to this discussion to share some additional support.

Do you have an appointment scheduled somewhere at this time or are you looking for care recommendations?

I have CRPS. I’m sorry to hear you do, too. I went to an anesthesiologist who specializes in pain management. I could not get any type of medication to work on my body. My CRPS is in my legs. In March I had a permanent spinal cord stimulator implanted in my spine. I am using the Boston Scientific one. It has taken some time to adjust to it however, I do not regret putting this in at all! I strongly recommend it.