My partner of 17 yrs had a malignant nerve sheath tumor on his right arm in 2021. We first noticed a lump about March of 2021 and thought it might be a Lipoma, we watch Pimple Popper, and it grew pretty quick which I Googled and did not like what I kept seeing. He has VA and Medicare is now 61 will be 62 this August. He had a biopsy in August of 2021, which required 13 staples. After the staples were removed, the tumor started coming out the site of the biopsy! It was unreal. He began radiation in Oct. which to me was too long to wait while this thing was growing out of his arm. He completed 26 days of radiation, had a surgery to remove on Dec 22 2021 what was left of the tumor, only to have it come back. On the 4th Feb. of 2022 he had to have his right arm and shoulder amputated. I'm trying to be brief and clear at the same time, so bear with me. I took him to the ER on June 6th for high blood pressure and high blood sugar, they ran a lot of tests and saw nodules in his lungs. A later biopsy showed it was cancer. We went to see an oncologist on June 24th Friday , we had a surgical one not a regular one at this time, and he told us it was stage 4 sarcoma. This oncologist said he was not familiar with this type, and will be sending us to St Louis which is 4 hours one way. Eldon is my husband's name, I'm Marie. He is in pain pretty much all the time. We are waiting for a PET scan appointment and a date for a doctor at Barnes Jewish Hospital. That's where we are at now.