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Anyone else have a Redundant / Tortuous Colon?
Digestive Health | Last Active: 23 hours ago | Replies (1116)Comment receiving replies
would like to hear how others are managing ? I'm doing fair-keep fluids up -high fiber-25-30 grams daily...psylium in am along with bentyl for spasms and peppermint oil capsule..drink a lot of fluid, small amt of 1/2 strength coffee š herbal ice teas, red meat 1-2 times month, Large serving of oatmeal and fruit in am-decreased fats- when I have a bowel movement-the spasms build up until I either pass gas or move a stool. My focus is to keep "everything flowing"-several times I went off regimen-got constipated with increased spasms-taught me a GOOD LESSON AND I REALIZE THAT BEHAVIOR IS WHAT WILL SEND ME INTO COMPLICATIONS. Need to be dilegent-if I miss my psyllium fiber and oatmeal in am (go out with friends)...I come back home, tank up on fluids, my psyllium and then have the oatmeal for lunch or dinner. I eat fruit 3 x day -with meals or snacks -dessert and I am tolerating 2 walnuts with my oatmeal . Really making an effort to chew well and slow down...
Anyone have more advice? I'm not getting much help from my GI doctor or staff-no teaching given...(got everything off the internet (which isn't always accurate .)
Would like to know-
Is this a lifelong condition?
Would surgical removal of elongated portion return me to my
prior status?
My last colonoscopy was extremely painful...no cancer they say,
no polyps, but if they werent able to "get through", how do they
know that?
Would like to know your experience with management...I feel
obsessed with my bowels-living on the toilet.
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Iāve had bowel issues pretty much my whole lifeā¦.Iām 52. As a child had severe constipation and now suffer from loose stools and bouts of diarrhea. Discovered I had a tortuous colon four years ago from a colonoscopy. Never really gave it much thought because the GI dr just put a one sentence statement in my report that I had this condition and my family Dr. didnāt make a big deal about it. They never equated my issues with having an extra long loopy bowel. 😣Fast forward to this week when I went in to have another colonoscopy by a different GI and he wasnāt able to complete the scope and just made a comment that there was an angulation in my bowel. I went home from the hospital wondering why he couldnāt complete the scope and OMG I had an aha moment today when I remembered four yrs ago my Dr telling me I had this. I began researching this TC and came across this group and also a FB post from the Mayo Clinic with about 50 or more replies from people with this condition. WOW! Mind blowing that I finally have an answer to all of my ongoing gut issues some 40 years in. In the past Iāve followed the SCD diet that is mainly followed by Chrohns and Colitis sufferers. It did work great for me but went off of it because of how strict it is. I think Iāll start it again.