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Kleine Levin syndrome

About Kids & Teens | Last Active: Jun 29, 2022 | Replies (18)

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@mbondula

I was diagnosed in 1972. At that time it was extremely rare. My parents were worried beyond belief. Symptoms lasted through 1976. In the event that anyone needs some support from someone who lived through this condition (parents or patients) please feel free to contact me.

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Replies to "I was diagnosed in 1972. At that time it was extremely rare. My parents were worried..."

Hello @mbondula and welcome to Connect. It is good of you to join this discussion group and to offer information about your experience with Kleine–Levin syndrome.

If you are comfortable doing so, would you like to share with other members on Connect a little bit about your experience? For example, at what age was this diagnosed? How was it treated? Do you know why the symptoms left?

I look forward to hearing from you again.