← Return to Testing Positive and Negative after MAC Treatment

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@catherine83

Hi sue

I was on the big 3 for 8 months I stopped treatment myself 4 months before I seen professor. I do my saline nebs twice daily. I am still coughing up sputum that can look green yellow and if I get deeps coughs specs of brown through it. I have pains out my back that come and go. I was diagnosed on my last appointment with ecoli pneumonia and he said he taught I may be carrying abit of it still and came me another of the same antibiotic I took on last appointment Ciprofloxacin 750mg twice daily it's breaking the cough a small bit am I am on it now 5 days, I an still suffering the same illness I originally went to A&E about I finding it truly hard to communicate with my professor. Last appointment I seen a doctor she noted all I'd to say went to see Prof, he came into appointment room said its gone just take this antibiotic and I'll see you in 6 month's, I went into shock when he left I cried to doctor why do I not feel any better of worse, and why are they shadows etc on my xray she said maybe scarring even tho it was cavity Mac I was diagnosed with, apologies it's all over the place I find I'm confused angry and sick and getting out of it mentally is hard when all says I'm good but I don't feel better. When I said to the doctor I think I'll need a second opinion she said there are 4 more consultants over there (other hospital) I think I need to clear my angry mental state before doing it all over again C.

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Replies to "Hi sue I was on the big 3 for 8 months I stopped treatment myself 4..."

@catherine83, I moved your message to this related discussion:
- Testing Positive and Negative after MAC Treatment https://connect.mayoclinic.org/discussion/positive-and-negative/

I did this so you can connect with fellow MAC members like @rits @thumperguy @128128terry11t, @heathert @n4seth who know first hand about the frustrations of getting answers regarding negative sputum, but still dealing with symptoms.

It sounds like a second opinion might be warranted in your case. Here's info should you wish to request an appointment at Mayo Clinic http://mayocl.in/1mtmR63

Here are a couple of related discussions that might interest you:
- Negative sputum results without treatment https://connect.mayoclinic.org/discussion/negative-sputum-results-without-treatment/
- MAC and Fatigue https://connect.mayoclinic.org/discussion/mac-and-fatigue/

Catherine, how are doing with clearing your "angry mental state" (albeit justified)? Have you found the energy to come up with a plan to get back on your horse so to speak, and move forward again?