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Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Neuroendocrine Tumors (NETs) | Last Active: Jun 28, 2022 | Replies (12)
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@hopeful2

I'm apologize for jumbling my response. Yes, in that ER visit they did a CT scan with IV contrast. That is where they did not mention any anomalies. I have not had a MRI or any other scan.

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Teresa, Volunteer Mentor | @hopeful33250 | Jun 28, 2022

It really would be good if you can have a more thorough workup, @hopeful2. If you think your PCP would be OK reading the link from the Carcinoid Cancer Foundation link about tests to diagnose, perhaps that would help educate him/her. This is a rare form of cancer but your doctor seems to be aware of the possibility which is encouraging.

Is it possible that the EPI could be causing some of these symptoms? Here is a link to a discussion group where EPI is being discussed, https://connect.mayoclinic.org/discussion/severe-exocrine-pancreatic-insufficiency-epi/. Please take a look and ask any questions of the members but clicking on "Reply."

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