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Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Neuroendocrine Tumors (NETs) | Last Active: Jun 28, 2022 | Replies (12)
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@hopeful33250

@hopeful2,

Here is a listing of tests that can be used for the diagnosis and follow-up of carcinoids. This link is from the Carcinoid Cancer Foundation. It can give you some guidance for the tests that you need to be having, https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/. You might check to see how many of these tests you have had.

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hopeful2 | @hopeful2 | Jun 27, 2022

I'm apologize for jumbling my response. Yes, in that ER visit they did a CT scan with IV contrast. That is where they did not mention any anomalies. I have not had a MRI or any other scan.

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