Connect
← Return to Looking for neuroendocrine tumor (NET) with carcinoid syndrome support
Discussion
Looking for neuroendocrine tumor (NET) with carcinoid syndrome support
Neuroendocrine Tumors (NETs) | Last Active: Jun 28, 2022 | Replies (12)Comment receiving replies
Hello @hopeful2
More than one test is needed to determine the possibility of carcinoid. Has your doctor ordered a serotonin blood test? A high serotonin level can also be indicative of a carcinoid problem. If your GI specialist is not nearby perhaps you can ask for a video consult. This might be a good option.
Given the EPI problem, have you had a CT scan or an MRI of the stomach?
Replies to "Hello @hopeful2 More than one test is needed to determine the possibility of carcinoid. Has your..."
Connect
Thank you for your swift reply. In May 2022, I ended up in ER in April of 2022 with sudden onset chronic constipation and no anomalies were mentioned about my bowel only fluid filled loops in small bowel. In May of 2022 I was diagnosed with torturous colon and a 12 mm serrated polyp (benign) removed during a colonoscopy. In June of 2022 I was diagnosed with EPI and low sodium. I am 69 and well past menopause. I will ask that PCP conduct the CgA test and see if he balks. The symptoms that he said sounded like carcinoid are terrible night sweats, weakness, unrelenting Raynauds, agonizing gut and arm and leg pain and weight loss, new onset skin rashes and burning skin. He spent 16 months testing me for autoimmune which always came out normal. I see that I need to do the basic tests to see if he is on the right road after reading your carcinoid list of tests.