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Neuropathy symptoms come and go - is this typical?

Neuropathy | Last Active: Jul 2, 2022 | Replies (15)

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@kmst1994

@jeffrapp
I think I need to “know” what I am living with as there has been lots of testing with no real answers. Right now the most likely culprit is either SFN or non celiac gluten sensitivity and it would help me to just know. The neurologist dismissed my thorough written history @johnbishop and I have hope, with no expectation, that he is more willing to listen this visit.

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Replies to "@jeffrapp I think I need to “know” what I am living with as there has been..."

@kmst1994
I see your point. You are in the difficult position of not actually having a diagnosis, so it can be helpful to simply know what is happening. Also, I agree that it is frustrating to have your physician reject your "thorough written history". It would be helpful to know whether you wrote that history, or if it was from another practitioner. Also, as another poster asked, did you have an EMG? In typical SFN, the EMG is negative.
In my case, I had a negative EMG, blood tests were negative, and I had typical symptoms, so the diagnosis was made, and then confirmed with the skin biopsy.