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DiscussionLooking for neuroendocrine tumor (NET) with carcinoid syndrome support
Neuroendocrine Tumors (NETs) | Last Active: Jun 28, 2022 | Replies (12)Comment receiving replies
Replies to "My PCP ordered a 5HIAA based on his opinion that I have carcinoid syndrone. It came..."
Hello @hopeful2
More than one test is needed to determine the possibility of carcinoid. Has your doctor ordered a serotonin blood test? A high serotonin level can also be indicative of a carcinoid problem. If your GI specialist is not nearby perhaps you can ask for a video consult. This might be a good option.
Given the EPI problem, have you had a CT scan or an MRI of the stomach?