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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
Hello- I was recently diagnosed with PMR Dec 2021. This was after 4-5 mins of working up my symptoms as if carpel tunnel, shoulder inquiry etc. i finally convinced my FP to run the inflammation markers ( ESR/CRP) and low and behold they were extremely high. I started on 15 mg of Prednisone a day and my early May this year I was down to 9mg with no early morning symptoms. Then, my brother died tragically and it trigger the PMR. 3 wks post event I began with 3 trigger fingers( right index, left thumb and right pinky). I went to a ortho urgent care and got Kenalog for the index and thumb. The pinky finger was tolerable.
So, my question yo you is this
1) has anyone developed triggers from PMR?
2) I awake sore in the morning in my upper arms muscles and I take 14 mg of Prednisone daily since the flare up. Should I break it up?
3) Does any raise the Prednisone does be a couple of mg’s when they have flare up without connecting with their provider?
4) how do you folks deal with those days when your PMR wants to plan mean on a given day? It is so depressing and I don’t want to be that whiner to those that don’t understand the disease but sometimes it feels better to just stay in place for a bit. Thoughts?
Replies to "Hello- I was recently diagnosed with PMR Dec 2021. This was after 4-5 mins of working..."
I have been off Prednisone for 18 months but still have some PMR symptoms like mild leg weakness, morning stiffness and occasionally the dreaded butt pain. I also have a second trigger thumb which came on a few weeks ago. I have had no treatment for this one so far as it’s hard to see a GP where I live - 5 week wait at the moment. The first trigger was pre-PMR diagnosis. I used a splint part of the time and kept rotating and gently trying to bend the thumb and it eventually recovered.
The splint is now on other thumb but it’s more serious as it is my dominant hand and painful. I have an appointment in a couple of weeks so will discuss options with the GP.
Thanks for bringing this up I only recently realised it may be related to that slippery critter PMR!
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So sorry you are having to deal with the ups and downs of treating this disease. I have been fortunate enough to be able to taper down from 15 mg to 5 mg since I was diagnosed last November. I too wake up with sore shoulders, biceps, wrists and hands but after taking prednisone and waiting an hour or so, it calms down and I can move into my day. Probably two days out of ten I feel worn out, and then my friends don't expect me to go out and play! Then I just rest and don't feel guilty about it. Be kind to yourself!