Hi, I have a very similar condition as you. Do you take Gabapentin? I take Gabapentin 900 mg
2x per day. Also what is "walk-on flex"? I am 79 and 1st discovered this condition about 45 years ago. It started with some numbness in both lower legs and feet and has progressed to where I have a hard time balancing. Thank you in advance for your response.
Chuckkc - I'm 72 yrs old, 2 yrs ago, I was in P. Therapy and it was suggested that I try orthotics, got a prescription from primary doc which Medicare covered the cost of these supports. I suggest you google ottoboxk walk on flex.....you will see what I'm talking about. They work well for me as I have drop foot, these allow a more normal heel to toe walk. Eliminates slapping of feet. Balance comes from below my knees, for me at least 70% improvement in balance. And, helps much in driving as well. Gabapentin did not work, I had adverse effects on 100 mg 3 X daily ... anger...common side effect with some patients. Neurologist suggested in my case, not to use Lyrica as well.
Ed
Hi, I have a very similar condition as you. Do you take Gabapentin? I take Gabapentin 900 mg
2x per day. Also what is "walk-on flex"? I am 79 and 1st discovered this condition about 45 years ago. It started with some numbness in both lower legs and feet and has progressed to where I have a hard time balancing. Thank you in advance for your response.
Hello @chuckc, I would like to add my welcome to Connect along with @njed and others. Balance is an issue with a lot of us with neuropathy. I thought I would share the link to the product mentioned by @njed since it might be something that would be helpful for me also even though I don't have dropfoot.
Hello @chuckc, I would like to add my welcome to Connect along with @njed and others. Balance is an issue with a lot of us with neuropathy. I thought I would share the link to the product mentioned by @njed since it might be something that would be helpful for me also even though I don't have dropfoot.
Hi - I am very new to this site.
I have idiopathic sensorimotor peripheral neuropathy, got official dx at Mayo in MN in Feb 2020 but been dealing with this since 2016. Started with numbness both feet 2015, drop foot in both 2017, about 70% numbness shins down to toes. Since Aug 2020, unusual sweating upper part of body. I do not have dry eyes, mouth. Small amounts of neuropathy in finger tips. I've heard pinched nerve from a fall can trigger neuropathy.
Hi Father of sticky rice @fatherofstickyrice, I smiled when I read your member name. I'll bet there is a story behind your chosing that name🙂. You mentioned you have peripheral neuropathy from your left knee down to your big toe. Do you just have PN in the left leg?
Yes @johnbishop, there is a story. While my wife (ethnic Lao) was pregnant she teased me saying she would give our son the nickname, "salt" or "sugar" so then I'd consume more of them (I try to eat healthy). So, I told her that if that were the case we should name our son "sticky rice" because I love sticky rice and I would love our child. The name was so unique that it stuck.
I have PN just in my left leg. And I can still dance.
Yes @johnbishop, there is a story. While my wife (ethnic Lao) was pregnant she teased me saying she would give our son the nickname, "salt" or "sugar" so then I'd consume more of them (I try to eat healthy). So, I told her that if that were the case we should name our son "sticky rice" because I love sticky rice and I would love our child. The name was so unique that it stuck.
I have PN just in my left leg. And I can still dance.
That is a great story! Thanks for sharing it. It's good that you can still dance and keep active.
Have you done any research into possible causes for the neuropathy only in your left leg? Just wondering if you have looked into any treatments or found anything to help with the symptoms.
Judging from the groaning and complaining coming from my monitor when I opened this page a few minutes ago, we must have a heavy burden of neuropathy among the Mayo crowd. I may have to find something else to add to my turmeric and tramadol. And my N. is getting worse by the day now. To control it I have had to move to about a 1/2 teaspoon of Turmeric in a glass of warm water every morning, and continue my 2x daily Tramadol. I have both Gelsolin (Amyloidosis) and Limb Girdle Muscular Dystrophy (LGMDr23). My entire right side and the left side of my head are affected, and this combo of stuff is all I have found that works for me, even a little bit. My neurologist says "Oh, you will get over it." Sure I will, when I leave this planet and move to the 10th planet for long term residency. oldkarl
Hi, I have a very similar condition as you. Do you take Gabapentin? I take Gabapentin 900 mg
2x per day. Also what is "walk-on flex"? I am 79 and 1st discovered this condition about 45 years ago. It started with some numbness in both lower legs and feet and has progressed to where I have a hard time balancing. Thank you in advance for your response.
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Chuckkc - I'm 72 yrs old, 2 yrs ago, I was in P. Therapy and it was suggested that I try orthotics, got a prescription from primary doc which Medicare covered the cost of these supports. I suggest you google ottoboxk walk on flex.....you will see what I'm talking about. They work well for me as I have drop foot, these allow a more normal heel to toe walk. Eliminates slapping of feet. Balance comes from below my knees, for me at least 70% improvement in balance. And, helps much in driving as well. Gabapentin did not work, I had adverse effects on 100 mg 3 X daily ... anger...common side effect with some patients. Neurologist suggested in my case, not to use Lyrica as well.
Ed
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6 ReactionsHello @chuckc, I would like to add my welcome to Connect along with @njed and others. Balance is an issue with a lot of us with neuropathy. I thought I would share the link to the product mentioned by @njed since it might be something that would be helpful for me also even though I don't have dropfoot.
WalkOn Flex: https://www.ottobock.com/en-us/product/28U22
You might also find the following discussion helpful --- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Do you like to walk for exercise?
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1 ReactionYes l like to walk but hills and bumpy terrain is a problem for me.
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1 ReactionI have peripheral nueropathy; from my left knee down to my big toe. There doesn't seem to be anything to do about it.
Hi Father of sticky rice @fatherofstickyrice, I smiled when I read your member name. I'll bet there is a story behind your chosing that name🙂. You mentioned you have peripheral neuropathy from your left knee down to your big toe. Do you just have PN in the left leg?
Yes @johnbishop, there is a story. While my wife (ethnic Lao) was pregnant she teased me saying she would give our son the nickname, "salt" or "sugar" so then I'd consume more of them (I try to eat healthy). So, I told her that if that were the case we should name our son "sticky rice" because I love sticky rice and I would love our child. The name was so unique that it stuck.
I have PN just in my left leg. And I can still dance.
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2 ReactionsThat is a great story! Thanks for sharing it. It's good that you can still dance and keep active.
Have you done any research into possible causes for the neuropathy only in your left leg? Just wondering if you have looked into any treatments or found anything to help with the symptoms.
It happened while waiting for my second hip surgery. Perhaps it is a pinched nerve.
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1 ReactionJudging from the groaning and complaining coming from my monitor when I opened this page a few minutes ago, we must have a heavy burden of neuropathy among the Mayo crowd. I may have to find something else to add to my turmeric and tramadol. And my N. is getting worse by the day now. To control it I have had to move to about a 1/2 teaspoon of Turmeric in a glass of warm water every morning, and continue my 2x daily Tramadol. I have both Gelsolin (Amyloidosis) and Limb Girdle Muscular Dystrophy (LGMDr23). My entire right side and the left side of my head are affected, and this combo of stuff is all I have found that works for me, even a little bit. My neurologist says "Oh, you will get over it." Sure I will, when I leave this planet and move to the 10th planet for long term residency. oldkarl
Does the Gabapentin help you?