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Neuropathy symptoms come and go - is this typical?

Neuropathy | Last Active: Jul 2, 2022 | Replies (15)

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@johnbishop

Hi @kmst1994, I have no medical training but from what I've read symptoms of neuropathy can happen quickly or grow slowly over time. They can also come and go, or get better or worse, at certain times. Depending on what caused your peripheral neuropathy, your symptoms may get better over time, or they may be lifelong. Mine came on slowly and got worse over 20 years but the progression has slowed or stopped the past 2 years, can't really tell from the symptoms. This probably explains it much better than I can...

"Does small fiber neuropathy come and go?
Most people with small fiber neuropathy experience a slow progression, with symptoms moving up the body from the feet. A diagnosis of small fiber neuropathy doesn't mean you'll be diagnosed with large fiber neuropathy later on. Neuropathic pain can worsen over time. In other cases, it goes away on its own."
--- What Is Small Fiber Neuropathy?: https://www.healthline.com/health/small-fiber-neuropathy

I would make a list of questions you have and write them down to take along with you to your upcoming appointment with your neurologist. Also, I would learn as much as you can about your condition and what treatment options are available since there really is no cure.

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Replies to "Hi @kmst1994, I have no medical training but from what I've read symptoms of neuropathy can..."

I am new to this forum. This post verified that peripheral neuropathy could go away on its own.

I have idiopathic PN. Mine started in 1999. I am now 71 years old. My PN is idiopathic, not diabetic or genetic. Every specialist said I would never get feeling back in my feet and legs. Both legs were numb from my toes and gradually worked up to above my knees. Now I have horrible pain in my shins. While progressing, I had zapping pain, stabbing pain, and finally numbness.

My neurologist dismissed me. She said I did not have PN and there was nothing she could do for me. Luckily, I have a pain doctor who treats my arthritis pain. He is going to do a nerve conduction test. My hope is for some answers.