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Central Sensitization - please share your stories

Chronic Pain | Last Active: Nov 18 3:37pm | Replies (160)
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@sandywilford

Thank you for the article on Central Sensitization. I’ve just been told that’s what causes my bladder pain. It’s so odd, one day it’s unbearable and one day it can be more tolerable. Very hard to understand. Thank you for the info.
Sandy

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Replies to "Thank you for the article on Central Sensitization. I’ve just been told that’s what causes my..."
Rachel, Volunteer Mentor | @rwinney | Jul 23, 2022

@sandywilford, @debkl, and others -

I completely understand, Sandy, how you say one day pain can be unbearable and one day it can be more tolerable. Central sensitization is a unique descriptor in that right. If I never learned the science behind CSS and read articles like @debkl shared, I would think I was crazy by what I feel in my body.

I thought bringing awareness of Mayo's Pain Rehab Center may be helpful. Here is a testimonial by a former Mayo Clinic Pain Rehabilitation Center graduate who greatly describes his experience in the program and gives an in depth look at life for 3 weeks while there.
https://patient.practicalpainmanagement.com/resources/pain-self-management/time-mayo-clinic-pain-rehabilitation-center
As a Mayo PRC graduate, I can attest that it is a life-changing program. You get out of what you put into it and by believing and wanting to live better, positive changes and hope can occur.

If anyone is frustrated by living with CSS, I encourage you to at least consider PRC. Here is more on the program:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
If anyone struggling with CSS has questions, I am always happy to share my journey or help in any way I can. What questions might you have for me?

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