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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)
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@nac1

Thanks Sue. You are always so helpful. I may have to go to the three-drug regimen. I just know I will have really bad side effects--diarrhea and worse incontinence than I have with coughing. Do you know of anyone who has had a "cure" of MAC with the three-drug regimen or is it just a reprieve? I have really been fighting it.

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Replies to "Thanks Sue. You are always so helpful. I may have to go to the three-drug regimen...."
Sue, Volunteer Mentor | @sueinmn | Jun 26, 2022

None of us is likely to proclaim ourselves "cured" because MAC is everywhere, and with bronchiectasis we are always susceptible. But... a number of, including me, have kept MAC at bay for significant time by nabbing 7% saline and doing airway clearance.
Also, a good regimen of probiotics, used daily kept my diarrhea controlled. Fatigue was the biggest problem. And the cough went away!
Have you tried neb plus airway clearance?
Sue

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