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Botox for Migranes

Chronic Pain | Last Active: Jun 5 11:51pm | Replies (77)

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@freedomfrom

I agree on botox. 1 treatment put me in immediate overnight hospital observation because they thought I had a stroke. One side of face wouldn't move. I had other side effects but cant remember them. (Memory problem mainly due to other medical issues) Of course 5 doctors said it couldn't be the result of botox. Even thought they didn't know what caused it. Lol
Also physicians who gave me the treatment said they never had it happen before.
I am fortunate as my face returned to normal in 2 months.

My mother had over 50 treatment by a few Dr's. She stopped after almost dying. Seriously. She needed help to move, swallow, etc.

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Replies to "I agree on botox. 1 treatment put me in immediate overnight hospital observation because they thought..."

Hello @freedonfrom and welcome to Mayo Clinic Connect. I am so sorry to read about both you and your mother's adverse reactions to Botox for your migraines. I am sure having your face not move was frightening. Glad to hear you regained feeling!

It is helpful to share both sides of patient's experiences to help others on Connect know what can happen as they are making important health decisions for themselves.

What have you been using for your migraines as a result of the Botox not being an option for you?

I am so very sorry that this happened to you. I just had my second treatment for very bad migraines and my headache disappeared immediately. He also has put me on Qulipta which has worked for me in the past. But I do have to watch out for constipation.

Merry

So sorry to hear about your terrible experience with Botox, I wish I never tried the shots to relieve my migraines I had migraines since I am very young and never thought of getting Botox, but my Dermatologists nurse convince me sine she also suffered bad migraines and said the Botox made them disappear, so I decided to do it, bad decision for me, it does help some. I was hit by a bike 4 years ago and had a headache for a year, it went away after a year, I had botox shots on my forehead last Augh. 2021, and developed a severe pain in my head on the side where I had the headache from the bike accident, it is almost a year and I am still suffering, when I cough I feel like someone is cutting my head open with a knife with no anesthetic, have been to 4 Neurologists and because it doesn't show up on the Cat Scan or MRI none of them have come up with a suggestion, meanwhile I am suffering, very hard to live with continuous pain every single day, much worse than a migraine, I am praying that somehow someone will come up with a cure, although my optimism is waning.
Icart

@freedomfrom Im so sorry to hear what you and your mom went through. Very frightening. I have tried 2 rounds of botox with no improvements and exacerbated symptoms for a few days following treatment. My neurologist wants me to try one more round but I don’t think it’s worth it. Thanks for sharing your story. I hope you have found some relief for your headaches.