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Seeking Help for Unknown Medical Issue
Autoimmune Diseases | Last Active: Jul 23, 2022 | Replies (41)Comment receiving replies
@ajidzior Me three for adding my welcome to Mayo Clinic Connect.
What a mess to be in, and have no answers. That certainly doesn't make your daily life any easier on you, does it?
If you haven't kept a journal of your symptoms, doctor visits, proposed diagnoses, medications, now is a good time to do that. Do you see a pattern? Are symptoms worse given a day of the week, or activities?
Have you considered any of the following:
-Did you move or change work location in the the time period since August 2019? Is it possible there is a causant factor in a new environment? Thinking about mold toxicity or asbestos or lead poisoning here.
-Do you camp or get out into the woods? Have you been tested for Lyme disease?
-Have you considered the services of a environmental or functional medicine doctor, to look at all the things that may be contributing to your symptoms?
These thoughts are what came to mind as i read your post. There are so many people here on Connect, someone may have a similar situation and will jump in to support you, also. Good luck and please post if we can help further, or when you get further along in your investigation!
Ginger
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Those are all great ideas. My daughter is a pre-med student and scribe for a doctor, so she has been keeping track of the meds, tests, results, doctor visits, etc. I just starting working with a homeopathic doctor who uses different tests, food, supplements to help the body heal itself. I was tested for Lyme disease but that was negative. I moved in 2020 after getting divorced. My house is a flip so totally remodeled, but I should look into that more. Good idea! I did have my Epstein-Barr come back super high and read a study that people, especially women, who have EB and Covid have a 60% chance of having long Covid. For now that seems to be what we are going with. I just had my 24 hour urine come back very high (Normethanephrine was 3 times the range and Total Metanephrines was double the range) which can indicate a tumor on my adrenal gland. I see my endocrinologist on Tuesday. SO many specialists and tests! I am thankful I can get into them and I have great insurance.