Have you tried the new Protocol 525 product for neuropathy relief?

Posted by John, Volunteer Mentor @johnbishop, Apr 21, 2020

I have used the original version of the Protocol 525 product (https://theprotocolworks.com/) since 2016. I have idiopathic small fiber peripheral neuropathy with the only symptom being numbness in both legs. When I started taking the protocol, the numbness was just below my knees. After 2 months, the numbness seems to be just above the ankles which is subjective on my part with no additional testing. I do feel it is a win-win for me as my neuropathy has not progressed like I was told it would by the neurologist. I have continued taking the protocol in hopes that it may continue to roll back the numbness symptoms. I have noticed some new feeling in my feet in the last 2 months. Some feeling has returned to me feet and they seem to feel better lately although I still have the numbness – hard to describe the difference.

The Protocol 525 is not a cure for neuropathy. It treats the pain and discomfort symptoms of neuropathy without the drugs which have their own side effects. Have you tried the Protocol 525 or the original protocol? Did it help? If yes, how? If no, please share.

Note: I have no commercial investment in the protocol and I am sharing this information as someone who has found some degree of relief using this combination of supplements. I also discussed these supplements with my Mayo primary care team before I started taking them. The care team sent them to the pharmacist for review who did not have any major concerns for me taking them.

*** Edited Oct 3, 2023 ***
For more information and a list of the ingredients, please see the frequently asked questions on the Protocol's website here - https://theprotocolworks.com/faq/.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@bb0753

Well I had already ordered the start up plus one month. If I decide to continue it I may contact you. Thanks for the offer.

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You're welcome

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@jaddaj441

What is Protocol 525?

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What is Protocol 525?

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@jchet

What is Protocol 525?

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Yes! What is Protocol 525?
Prescription or commercial product? Doctor recommended?
Thanks for sharing! 😇

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@felicia2

Yes! What is Protocol 525?
Prescription or commercial product? Doctor recommended?
Thanks for sharing! 😇

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Welcome @jchet and @felicia2, If you scroll to the top of the discussion and read the description it explains what the Protocol 525 is -- here's a link to the top of the discussion - https://connect.mayoclinic.org/discussion/have-you-tried-the-new-protocol-525-product-for-neuropathy-relief/. The Protocol 525 is not a cure for neuropathy. It treats the pain and discomfort symptoms of neuropathy without the drugs which have their own side effects.

Here is a list of frequently asked questions on their website that might be helpful for other questions you may have - https://theprotocol525.com/faq/.

I have used the protocol since September 2016 and I feel that it has slowed or stopped the progression with my small fiber PN but I only have numbness and no pain with my neuropathy. From my experience it is not something that is going to give you overnight relief but if you stick with it, it may allow you to treat the pain symptoms without drugs.

If you decide to try it for a few months or so, can you provide an update?

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@felicia2

Yes! What is Protocol 525?
Prescription or commercial product? Doctor recommended?
Thanks for sharing! 😇

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Am on it now.
finishing the 1st 30-40 days.
Purchasing the next dosage. Not sure where or whom to ask but I will find......
What is protocol 525?
An increased dosages of/with.MINERALS AND VITAMINS. NOT A CURE I MUST SAY But once you, me, fill an improvement, the system is to keep on and ask our DOCs about reducing what we are ON NOW.

I HAVE NOT FELT ANY HELP BUT SOMETHING MUST. I am confident it will.

Look, there are 12 bottles
12 pills in the AM
7 PM

THE MID PILLS I TAKE WITH THE AM SINCE I TAKE THE INITIAL AT NOON OR SO/..

The PM IS CLOSER TO 8-9 pm..
Ooh.. HEMP PURE OIL IS ALSO INCLUDED IN THE AM / PM:

On google there is a group dedicated to this protocol.
Truly not involved but sholud.
I will take for 90-120 days

Oooh?
Some pills will run out but
Can find the identical same on amazon.

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It’s too much for me too. My Rx meds will have to keep me going. My Medicare and insurance will have to be my only alternative.
I’m trying to find other sufferers who might be taking some of these supplements advertised out there. I’m taking B complexes and other vitamins but maybe not enough.
Keep me updated.
Thank you
Mardelle

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@danmardy44

It’s too much for me too. My Rx meds will have to keep me going. My Medicare and insurance will have to be my only alternative.
I’m trying to find other sufferers who might be taking some of these supplements advertised out there. I’m taking B complexes and other vitamins but maybe not enough.
Keep me updated.
Thank you
Mardelle

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@danmardy44 - The Foundation for Peripheral Neuropathy has a list of supplements for the nervous system here, most of which are included in the Protocol 525 -- https://www.foundationforpn.org/wp-content/uploads/2016/10/Supplements-Not-highlighted.pdf

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@danmardy44

It’s too much for me too. My Rx meds will have to keep me going. My Medicare and insurance will have to be my only alternative.
I’m trying to find other sufferers who might be taking some of these supplements advertised out there. I’m taking B complexes and other vitamins but maybe not enough.
Keep me updated.
Thank you
Mardelle

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Ive got an unopened 3 month supply from Protocol 525 I'd sell for a discount.

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@carlossierra1287

Am on it now.
finishing the 1st 30-40 days.
Purchasing the next dosage. Not sure where or whom to ask but I will find......
What is protocol 525?
An increased dosages of/with.MINERALS AND VITAMINS. NOT A CURE I MUST SAY But once you, me, fill an improvement, the system is to keep on and ask our DOCs about reducing what we are ON NOW.

I HAVE NOT FELT ANY HELP BUT SOMETHING MUST. I am confident it will.

Look, there are 12 bottles
12 pills in the AM
7 PM

THE MID PILLS I TAKE WITH THE AM SINCE I TAKE THE INITIAL AT NOON OR SO/..

The PM IS CLOSER TO 8-9 pm..
Ooh.. HEMP PURE OIL IS ALSO INCLUDED IN THE AM / PM:

On google there is a group dedicated to this protocol.
Truly not involved but sholud.
I will take for 90-120 days

Oooh?
Some pills will run out but
Can find the identical same on amazon.

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Just a note, the mid day pills MUST be seperated by at least 2 hours from the AM and PM pills.

If you don't seperate them, the effectiveness of some of the elements are cancelled out!

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@bb0753

Thanks for responding. I Try to avoid processed carbs and eat overall low carb diet mainly keto but often fall of the diet. I also avoid artificial sweeteners except stevia. Only weigh 119 so weight not issue.

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Do you feel it helps eating this way? I was recently diagnosed with peripheral neuropathy and cutting out inflammation foods help ? My feet and now my hands , seems to be moving fast. Thank you you for sharing.

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