Connect
← Return to Anyone else have a Redundant / Tortuous Colon?
Discussion
Anyone else have a Redundant / Tortuous Colon?
Digestive Health | Last Active: 1 day ago | Replies (1116)Comment receiving replies
So you mentioned pancreatic insufficiency…
Do you take the prescription enzymes? ie, zenpep or creon?
I was misdiagnosed for 30 years with IBS-D and it was a constant struggle because nothing really helped.
My condition ruled my life 😵💫.
Finally the 3rd gastro practice said I had a tortuous colon, diverticulitis, chronic gastritis, hiatal hernia, stomach ulcers, cachexia and IBS-D. ALL caused by exocrine pancreatic insufficiency. I now take Zenpep when I eat and it has truly changed my life for the better. My weight is now a healthy 106, (I’m only 5ft 2inches) and very fit age 67.
The ONLY foods I avoid is sucrose. That requires another prescription enzyme and I prefer to just avoid any added sugars. I consume all the fruit I desire with no issues whatsoever. If I want desserts, I just use Stevia to bake with and have no issues. I hope others that suffer from these digestive intestinal issues get tested for EPI. It’s estimated that there are MANY people misdiagnosed. It’s a genetic condition that was fairly unknown until around the year 2000.
There is HOPE! Never ever give up advocating for yourself.
Replies to "So you mentioned pancreatic insufficiency… Do you take the prescription enzymes? ie, zenpep or creon? I..."
I’m glad you found something…at least a real Dr. My issue is that I’ve been exactly opposite my whole life….never left home w/out Imodium! I’ve had more than my fair share of “scopes”, they give me the report & send me packing…diverticula w/out diverticulosis, tortuous, long w/ acute bends & blah blah…my 1st scope was not bad. I had mentioned a while back (don’t remember when)…cuz I can’t remember a lot. I mentioned my gums were receding at an alarming rate….since then, I’ve lost a filling & a cap. Now it seems ANYTHING I eat blows my stomach like a balloon!! It’s SOOOO painful, I can barely stand, so I spend too much time lying down
IT SUCKS…I went to my orthopedist (did 1st hip replacement. I just wanted to ask if there was a way to expedite the metal ions from my body.
He said “he’d never heard of it & didn’t know what I was talking about”.. I was floored, I didn’t know what to say.
Connect
I too received a recent diagnosis of EPI. Prescribed Creon. The side effects were intolerable. Terrible nightmares and excruciating back pain. Does the Zenpep cause side effects for you? I am glad you have a happy ending! Thank you for posting. I had just got off the phone with the pharmacist to ask about alternatives to Creon.