← Return to Might my anemia and lowered hemoglobin be related to MAC?

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@salynn

Thank you for the welcome! I was diagnosed with MAC in January. I had caught a cold in early December that kept getting worse. I finally went to urgent care on New Year's Eve where they promptly called an ambulance after discovering that I was hypoxic. I was hospitalized with multifocal pneumonia with acute hypoxic respiratory failure and severe sepsis. On the bronchoscopy, the only pathogen initially identifed was rhinovirus, but they also suspected aspiration pneumonia because I apparently had some dysphagia. A few weeks later, the AFB cultures came back showing MAC. They chose to start me on the Big 3 because of the clinical presentation and because I am significantly immunocomprised secondary to a treatment for lupus. In March, I had my second CT, which was when I was diagnosed with bronchiectasis. Since the anemia is thought to be due to chronic inflamation, the main focus has been trying to get the MAC under control. I had to go off of rifampin due to adverse effects and am now on moxifloxacin and hope to see movement in the right direction. This forum has been a font of very useful information as I go through this!! I think I have learned more to help me on this journey from all of you here than anywhere else!

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Replies to "Thank you for the welcome! I was diagnosed with MAC in January. I had caught a..."

If there is no certain cause for the anemia, you may want to ask your pcp to blood screen you for celiac disease. I am suggesting this since you have lupus and other autoimmune diseases are more common when you already have one. Anemia is a common side effect of undiagnosed celiac disease-and sometimes the only “symptom”.

Have you discussed the possible connection between MAC and anemia with your pulmonologist? Unless it is mild the anemia should not be ignored until the MAC is controlled because that can take many months.

I agree completely, this forum has been very helpful in teaching us a lot about how to deal with this problem and its context.
Thank to all of you who makes it possible.