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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@lesterjo

Hi every one! New to site. 6/25/2022. I had neck surgery in April 2021. Over a year ago. Now I have the two fingers on my right hand, that I cannot use. I went to an neurological Doctor Who gave me a EMG test. Then, she diagnosed me with having a ALS. She referred me to another doctor to confirm her findings. But, the next doctor felt that he could not say one way or the other whether I had ALS or not. So, that doctor said that because of prior surgeries to my spine and cervical spine, he cannot say for sure. Now they have sent me to an ALS specialist. So far, I have had one blood test, and I'm waiting to have two MRIs. One of my cervical spine and another of my thoracic spine. None of these doctors are close to my home. I live in New Jersey near the Atlantic ocean. And they sent me to an ALS specialist in Philadelphia. We will see what happens. I am certainly getting fed up with this runaround. I had, like I said, next surgery in April 2021.

And like they say, if it looks like a duck, if it acts like a duck. It must be a duck. It had only been one month since my neck surgery, when the third and fourth digit on my right hand acted up.
Remarkable!

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Replies to "Hi every one! New to site. 6/25/2022. I had neck surgery in April 2021. Over a..."

Hi @lesterjo, Welcome to Connect. It can be quite discouraging when trying to get a diagnosis and a treatment that helps. There is another discussion you might find helpful --- Neuromuscular Testing and Waiting for ALS confirmation: https://connect.mayoclinic.org/discussion/neuromuscular-testing/.

When is your appointment with the ALS specialist in Philadelphia?

I think there is an ALS specialist at Hackensack Meridian in Neptune NJ...good luck !