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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

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@zoe10

I’ve heard that when you’re on a higher dose of prednisone you can taper with larger numbers. But when you get to a lower dose (like 10 mg), you need to do what my doctor called a “dead taper” and that it will take me one and a half to two years to get off the 10 mg of prednisone I’m currently taking.
Good luck!

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Replies to "I’ve heard that when you’re on a higher dose of prednisone you can taper with larger..."

Welcome @zoe10, I started both of my occurrences of PMR at 20 mg prednisone and you are right the tapering between the higher dose and 10 mg was fairly easy and it got tougher and slower between 10 and 0. My first time with PMR it took the last 6 months of 3 and half years to go from 1 mg to 0. I went from 1 to 1/2 back to 1 back to 1/2, etc. until I was finally able to stop taking prednisone with little to no pain. I think the difficult part is that each of us are different which is why my rheumatologist told me to listen to my body when tapering down.

My rheumy suggested that I keep a daily pain and dosage log which really helped me while tapering. Do you keep a daily pain/symptoms log along with the dosage you took that day?