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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@danmardy44

I’ve had neuropathy for close to 8 years. I started after I had been on Tramadol for 10 years. Thought that was the cause. My pain Dr said no they really don’t know why I have it. I’m not a diabetic. Went to Neurologist and was tested. Yup you have it. Take B vitamins and Nurontin. Don’t know why you have it. That was bad experience. Frustrating.

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Replies to "I’ve had neuropathy for close to 8 years. I started after I had been on Tramadol..."

Hi @danmardy44, Welcome to Connect. I think a lot of us have your frustration. When I first started searching for answers, I joined the Minnesota Neuropathy Association. At one of our meetings before it disbanded we had a guest speaker – an 80+ year old neurologist from the University of Minnesota – 2 comments he made that got my attention were if you live long enough everyone gets neuropathy and the second one was how the term idiopathic came about for diagnosing neuropathy – from the idiot neurologist who diagnosed it. 😁 Since then I have been trying to learn as much as I can about neuropathy causes and available treatment options which can be frustrating since there really is no cure, just treatments for the symptoms.

Two sites that have helped me are:
-- Neuropathy Commons: https://neuropathycommons.org/
-- The Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

There is another discussion you might find helpful -- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Do you mind sharing a little more about your neuropathy diagnosis and symptoms?