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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

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@biblern

I’ve been on Prednisone for at least ten years for PMR. I’ve spent most of the last 3-4 years on 3 mg/day. When I’ve gone below 3, my symptoms come back with a vengeance, & I go back to 5 & slowly taper back to 3. I’m 86-years old & expect to be on Prednisone for the rest of my life. All my health checkups, blood tests, etc. are within normal range. My most annoying symptom of long term Prenisone use is very thin skin, easy bruising, & what seems to be permanent discoloration in my lower legs. Otherwise, I feel fine & live an active life (for an 86-year-old, I guess 😊.)

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Replies to "I’ve been on Prednisone for at least ten years for PMR. I’ve spent most of the..."

Thank you so much for this info! It’s comforting to know that you’ve had few side effects after such a long time. I’ve noticed some discoloration in my legs and hadn’t connected it to the prednisone (red splotchy areas). Thanks again!

Hi @biblern, Welcome to Connect Youngster! (from another 79 year old youngster 🙃). It's good that you can be on a lower dose of prednisone. I've had 2 occurrences of PMR and it's currently in remission and I also have very thing skin that bruises easily along with the discoloration in my legs which the doctor told me was edema. I also have lymphedema and have to wear compression socks every day 🙁.

Do you mind sharing how you found Connect, what you were searching for?

I just wish there was something we could do about the bruising and thinning skin.