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I started 4 years ago. I have done physical therapy, took gabapentin from dermatitis to, took many botoxinjections , used Valium suppositories, estrogen Supository, used Premarin
Cream, coconut oil, lidocaine gel, Lyrica I had Cyroablation of my Pudendal nerve and many Pudendal nerve injection and after one by a doctor in a hospital setting which took away the pain for 12 hours so he would not give me a series because the effect didn’t last long enough. I have taken yeast infection medication and antibiotics. I am about to give up. My GYN just sent me to a Emory pain clinic. They can do a trial to see if it works. I will probably do that since I don’t know what to do. Maybe all the stress living with a mean husband for 42 years caused it. I have done many spin classes which may have caused it. Do you have any suggestions?
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@francesmharris123 I do believe stress exacerbates this condition. I have experienced more pain during stressful times.
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You seemed to have pursued many avenues to achieve relief. I sympathize and know how this affects your life. My husband was very understanding and supportive, so it must make things a lot worse if your husband can’t imagine your pain and be supportive. In my case it might help to know that my vulvodynia began with an antibiotic cream that was prescribed. I was allergic to it and it burned me. This injury caused damage to the nerves. Following that my immune system kicked in to further complicate things and I ended up with lichen sclerosis an incurable condition that is now under control. I take the maximum allowable dose of pregabalin, that’s Lyrica I believe, and 3 to 4 10mg. Pills of amitriptyline. If I feel a flare up ai apply clobetasol ointment only twice a week for 2 or 3 weeks then stop for one week and use only petroleum jelly. I don’t suffer from anxiety or stress very much with exception of suffering from constant ringing in the ears for which there is no cure and little relief. I don’t have any further suggestions for you except maybe to give all treatment involving application of stuff to your vulva except for petroleum jelly for awhile and then begin the clobetasol ointment providing your doctor prescribes it. Have you seen a dermatologist? Lots of women automatically refer us to a gyno which is not where we need to be. I firmly believe that vulvodynia is not really a reproductive system problem, it’s a skin problem. Good luck to you finding some relief. Let me know how it goes, I feel for you.