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Aromatase Inhibitors: Did you decide to go on them or not?

Breast Cancer | Last Active: May 12, 2023 | Replies (1190)
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@callalloo

I had DCIS invasive, 7mm including clean margins, stage 1A. Clean sentinel lymph node biopsy. Discovered September, 2021, excised October, 2021. Detected by diagnostic mammogram and ultrasound as I'd had a tiny underarm lump, which, oddly enough, went away before the tests and was undetected by them.

I missed a mammogram the previous year because of lockdown and wondered if this could have been caught earlier. Oncologist thinks it might have been...or not as it was small. But I'll never know.

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Replies to "I had DCIS invasive, 7mm including clean margins, stage 1A. Clean sentinel lymph node biopsy. Discovered..."
windyshores | @windyshores | Jun 24, 2022

@callalloo DCIS is non-invasive/pre-invasive so did you also have invasive cancer? What do you mean by "I had DCIS invasive?"

I think it is reasonable to avoid meds with DCIS but that reluctance should not necessarily be relevant for those who actually have invasive cancer.

The Oncotype Dx is also used for those with 1-3 lymph nodes so not just stage 0 or 1.

Reduction from a risk of 8 to 4% is significant.

I took letrozole for 5 years with very few side effects, and none of my friends had side effects from AI's, other than bone loss of course, which can be addressed.

I just want to put a positive word in for these medications. I miss being on it because I felt protected. Forums tend to be negative and then everyone is too scared to take meds. Try them!

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