1. < Neuropathy

Burning Feet syndrome

Posted by ndovu @ndovu, Mar 17, 2012

Hi everyone! Am 40yrs man in Africa - Country. Kenya. In 1993 aged 22 and in college, I developed burning feet. So hot have been my feet that I've not worn closed shoes all those yrs
All tests done over the yrs -,including blood sugar, pressure, vitamin test, nerve endings test etc. All have been negative. I'm generally healthy, with no major problem. I need anyone who has had such a problem and got help to help.

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Hank | @jesfactsmon | Jun 21, 2020
In reply to @maryflorida "John, after ten years of pain, last week one night my feet were like ice cubes,..." + (show)
@maryflorida

John, after ten years of pain, last week one night my feet were like ice cubes, not sure if that is "burning" or "freezing" since the symptoms might feel the same. The pain was the worst pain I have ever felt and I have given birth to eleven children some with no anesthetic. I couldn't get the pain under control so I took 2 vicodin, 1 Benadryl and then kept my feet on a heating pad for hours. Is this part of neuropathy? If so, I don't like it very much. 🙂

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Hi Mary, sorry to hear you are in so much pain. Like many others, my wife has severe neuropathic burning in her feet. She hates taking drugs due to the terrible side effects as well as the limited effectiveness most people describe. So anyway, the only thing she has found so far that has given her some relief is a product called Penetrex. She says it reduces her pain level about a third (e.g. from a 7 to a 4 for example) for 2-3 hours after use, which is something. In case you are not already aware of it and you are interested, you can find it on Amazon. I think others on Connect have tried it but I have not heard any feedback from anyone. I mentioned it in another post in May. Here is the page link if you'd like to see it (It's the post from Fri, May 15 6:54am):
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?commentsorderby=DESC#chv4-comment-stream-header
Good luck to you Mary, hope you find some relief, Hank

REPLY
1 reply
maryflorida | @maryflorida | Jun 21, 2020
In reply to @jesfactsmon "Hi Mary, sorry to hear you are in so much pain. Like many others, my wife..." + (show)
@jesfactsmon

Hi Mary, sorry to hear you are in so much pain. Like many others, my wife has severe neuropathic burning in her feet. She hates taking drugs due to the terrible side effects as well as the limited effectiveness most people describe. So anyway, the only thing she has found so far that has given her some relief is a product called Penetrex. She says it reduces her pain level about a third (e.g. from a 7 to a 4 for example) for 2-3 hours after use, which is something. In case you are not already aware of it and you are interested, you can find it on Amazon. I think others on Connect have tried it but I have not heard any feedback from anyone. I mentioned it in another post in May. Here is the page link if you'd like to see it (It's the post from Fri, May 15 6:54am):
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?commentsorderby=DESC#chv4-comment-stream-header
Good luck to you Mary, hope you find some relief, Hank

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Thank you, Hank. I'll check it out.

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1 reply
maryflorida | @maryflorida | Jun 21, 2020
In reply to @maryflorida "Thank you, Hank. I'll check it out." + (show)
@maryflorida

Thank you, Hank. I'll check it out.

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One more Q.. is burning feet the same as frozen cold feet? I think probably they are the same??

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lrh Peggy | @lrh | Jun 21, 2020
In reply to @ujeeniack "An 80 year old woman in my senior residence has been taking gabapentin (3x 100) but..." + (show)
@ujeeniack

An 80 year old woman in my senior residence has been taking gabapentin (3x 100) but is now having burning feet.

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I am a 78 year old woman who has suffered for the past few years with the burning feet problem especially at night. About six months ago, I began taking two 200 mg capsules of Alpha Lipoic Acid at bedtime and I am so happy to say that it has helped me considerably. Before trying the ALA, I used an topical Avon product called Foot Works that was somewhat helpful, but now do not need it as the ALA has been the answer for me. I have idiopathic small fiber neuropathy.

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Jun 21, 2020
In reply to @lrh "I am a 78 year old woman who has suffered for the past few years with..." + (show)
@lrh

I am a 78 year old woman who has suffered for the past few years with the burning feet problem especially at night. About six months ago, I began taking two 200 mg capsules of Alpha Lipoic Acid at bedtime and I am so happy to say that it has helped me considerably. Before trying the ALA, I used an topical Avon product called Foot Works that was somewhat helpful, but now do not need it as the ALA has been the answer for me. I have idiopathic small fiber neuropathy.

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Hello Peggy @lrh, Welcome to Mayo Clinic Connect. Thank you for sharing what helps you with the burning feet problem. I also have idiopathic small fiber PN and take R-ALA as one of supplements that helps me although I don't have burning feet syndrome. I'm 77 and I tried many creams, salves, lotions, and oils to see if they would help my neuropathy but had no success. That was long before finally seeing a neurologist and getting a diagnosis. That's when he told me there isn't any topical that will help with numbness. I still use various moisturizers every evening on my legs to keep the skin hydrated. I do it at night because it would be impossible to get my compression socks on in the morning if I put lotion on them.

Do you still use a moisturizer on your legs to help with the neuropathy or skin?

REPLY
1 reply
lrh Peggy | @lrh | Jun 21, 2020
In reply to @johnbishop "Hello Peggy @lrh, Welcome to Mayo Clinic Connect. Thank you for sharing what helps you with..." + (show)
@johnbishop

Hello Peggy @lrh, Welcome to Mayo Clinic Connect. Thank you for sharing what helps you with the burning feet problem. I also have idiopathic small fiber PN and take R-ALA as one of supplements that helps me although I don't have burning feet syndrome. I'm 77 and I tried many creams, salves, lotions, and oils to see if they would help my neuropathy but had no success. That was long before finally seeing a neurologist and getting a diagnosis. That's when he told me there isn't any topical that will help with numbness. I still use various moisturizers every evening on my legs to keep the skin hydrated. I do it at night because it would be impossible to get my compression socks on in the morning if I put lotion on them.

Do you still use a moisturizer on your legs to help with the neuropathy or skin?

Jump to this post

Yes, I do use a skin moisturizer on my legs but I haven't noticed that it helps with the PN. As I read the postings on this website, I realize that I am very fortunate in that the only bothersome symptoms of PN I have are very mild comparatively speaking. I have burning feet and sometimes hands only at night and have found that Alpha Lipoic Acid is the answer for me. I am fairly certain that my PN comes from many years of taking Statin drugs although I have no proof of this, and doctors I have mentioned this to will only say that "it's possible", but they just don't know. Since stopping Statins about 5 years ago, the PN has not worsened.

REPLY
avmcbellar | @avmcbellar | Jun 21, 2020
In reply to @lrh "I am a 78 year old woman who has suffered for the past few years with..." + (show)
@lrh

I am a 78 year old woman who has suffered for the past few years with the burning feet problem especially at night. About six months ago, I began taking two 200 mg capsules of Alpha Lipoic Acid at bedtime and I am so happy to say that it has helped me considerably. Before trying the ALA, I used an topical Avon product called Foot Works that was somewhat helpful, but now do not need it as the ALA has been the answer for me. I have idiopathic small fiber neuropathy.

Jump to this post

Hi Peggy, I also have tried the ALA supplement for my neuropathy. I take one capsule of 600 mg daily. I believe it is the cause of the burning feeling in my stomach. Unfortunately, I have not noticed an improvement using the supplement. I will stick to foods high in ALA for now. I am glad you found a product that helps, excellent!

REPLY
1 reply
lrh Peggy | @lrh | Jun 21, 2020
In reply to @avmcbellar "Hi Peggy, I also have tried the ALA supplement for my neuropathy. I take one capsule..." + (show)
@avmcbellar

Hi Peggy, I also have tried the ALA supplement for my neuropathy. I take one capsule of 600 mg daily. I believe it is the cause of the burning feeling in my stomach. Unfortunately, I have not noticed an improvement using the supplement. I will stick to foods high in ALA for now. I am glad you found a product that helps, excellent!

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One thing I have noticed for sure is that what works for one person does not necessarily work for another! No wonder doctors sometimes have difficulty deciding what meds to prescribe.

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1 reply
avmcbellar | @avmcbellar | Jun 21, 2020
In reply to @lrh "One thing I have noticed for sure is that what works for one person does not..." + (show)
@lrh

One thing I have noticed for sure is that what works for one person does not necessarily work for another! No wonder doctors sometimes have difficulty deciding what meds to prescribe.

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I agree Peggy. That is why we have to be our own advocate in regards to our health. We need to ask questions to determine if a medication is right. Don’t leave the decision totally up to the doctor. Doctors do make mistakes. After all, we know our bodies better than they do. I think it is important to listen to their reasoning for the recommendation and to do our research before making a decision.

REPLY
maryflorida | @maryflorida | Jun 23, 2020
In reply to @colleenyoung "Hi @ndovu, I'm sorry to hear that you are still suffering from burning feet syndrome since..." + (show)
@colleenyoung

Hi @ndovu, I'm sorry to hear that you are still suffering from burning feet syndrome since you first posted about it back in 2012. Has anything worked to help alleviate your symptoms over the past few years? Is your situation caused by any of the possible causes here http://www.mayoclinic.org/symptoms/burning-feet/basics/causes/sym-20050809

You may be interested in joining the group of people talking about peripheral neuropathy here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/

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One question I have still........my feet are like frozen cold sometimes. I know ice can feel like you are hot, but is this "burning feet"? ice cold?

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