← Return to Joint inflammation and muscle pain after COVID

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@jcg

I had tons of blood work done by doctors that wouldn't listen to me when I say I was in excruciating pain in my hips, knees ankles and toes. 2 test showed extremely high. Creatine kinase and c reactive protein. I had a multi faceted issue post covid. I had muscle degeneration, numbness and loss of my ability to walk without my legs feeling like my brain and legs weren't on the same page. I was unable to do anything other than basic walking for over 8 weeks. Still over 10 months later I still have mild joint pain in legs. I am 41. I also am very active in running, golf, tennis, basically anything athletic with no joint issues prior to covid. All of my symptoms started after around 7 days post covid. They came one after another about a week separated each major symptom.

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Replies to "I had tons of blood work done by doctors that wouldn't listen to me when I..."

Well stay on track of things. I am 7 months in, and been to some doctor's here in Arizona that promote long covid centers, but to be honest I have had to be my own advocate, and as a former athlete and still competitive tennis player pre-covid, it gets frustrated. The NIH pumped billions into healthcare facilities to say try to assist long covid patients, but to be honest I go in with more printed information from online youtube gurus that discuss how the virus works, etc. and still the doctor's look like a deer in headlights unfortunately. Mayo is a great place as well, but again, not many doctor's know that the key issue with long covid is that the immune system went haywire, and stays haywired, so the key is to find natural treatments to get immune system back to normal to stop inflammation.

Prednisone is a miracle drug for long covid symptoms, but you cannot stay on it, so once doctor's find a natural substance that mimics Prednisone people will slowly get better I believe. It's an over active immune system that is the issue, and even all the Turmeric in the world cannot control it as I have done it and no where in comparison to what Prednisone can do, but again you cannot stay on it. Stick to vegetables and very lean protein foods I would also say, and fast at least 3 days a week for like 14 hours a day as seems to help my system feel better resetting itself. Eating often seems to cause inflammatory responses as well, and long covid people need to have the body in a calm state.

I am 7 months in, and still have super muscle pains, super high EBV levels and high hystamine levels, but doctors cannot figure out what covid triggered. Tested positive for Mixed Connective Tissue Disorder as well and never had any issue prior. Just stay diligent and on top of doctor's even if they think you are crazy, believe me you are not as I had zero issues prior and played semi pro tennis 2 weeks prior to covid with no issues at all. Advocate for yourself, and if you go to Holistic doctor's at all, you can tell them to run any blood test you want and they will. Some medical doctors might look at you and ask why would you want these done, etc. Believe me, you are the advocate, and our amazing doctor's of the world will start to really gather more information to help others just from us long covid people being advocates.

Everyone stay positive, enjoy life, as many people in the world have more problems than we do. We can change our lives, some are terminal, so say the prayers to the Universe for those people.