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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)
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@suetex

Thank you for your input. I wish my dr. seemed even a little bit that approachable to allow me to set my own pace. When I was doing well, he seemed very content to give me just a few minutes-which was all I needed. Now, things have changed, but he hasn't. When I see him next, I will be very forward and see how he handles it. If he has only one way of handling this disease then he isn't the doctor for me. I think keeping a pain log is a good idea.

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Replies to "Thank you for your input. I wish my dr. seemed even a little bit that approachable..."
John, Volunteer Mentor | @johnbishop | Jun 23, 2022

I think you are right to advocate for yourself. Hopefully your doctor will see that you want to be a part of the solution and learn more about your condition. Here are a couple of links that I think may help you with your next appointment.

-- Tools for the visit: https://patientrevolution.org/visit-tools
-- Communication barriers: https://patientrevolution.org/barriers

Good luck!

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tillysam | @tillysam | Jun 24, 2022

It is very important for you to remind your doctor of what is good for you. It took my rheumatologist 2 years to finally realize that I am different from most patients. And now he listens very carefully to me.

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