Burning Feet syndrome

Hello Mary
Your point is valid and well taken. Perhaps a great suggestion would be to utilize Connect"s "Private Message" option for off topic conversations. No harm, no foul.
Wishing you a pleasant evening.
Rachel

I’m not sure if this is neuropathy..I’ve had blood work done and my Ana is positive CRP is high and HLAB27 is high.. So they say lupus and ankle losing spondylitis.. But my feet hv started itching, burning and stinging hurting so bad..any suggestions??Is there anything I can do to easy the pain?

Hello @acid2come, You'll notice we moved your post to this discussion on Burning Feet Syndrome which members share many of your symptoms and may be able to share their experience along with what helps them. You may also be interested in reading through the following discussions that also may be associated with some of your symptoms.

Ankylosing spondylitis, losing feeling in my legs: https://connect.mayoclinic.org/discussion/diagnosed-with-ankylosing-spondylitis/

Undiagnosed and frustrated: RA? Lupus?: https://connect.mayoclinic.org/discussion/hi-im-new-to-the-forum-and-want-to-share-my-journey/

Erythromelalgia: https://connect.mayoclinic.org/discussion/erythromelalgia/
Based on symptoms of burning pain and redness in the hands and feet, and sometimes the arms, legs, where the flare-ups usually start as an itching sensation, which worsens to pain, -- cited from https://www.nhs.uk/conditions/erythromelalgia/

Are you able to share what you have already tried to help with the itching and burning?

@acid2come Hi Have you seen a neurologist? I would suspect this is neuropathy .So many people on here have this Also you can talk with a rheumatologist . How,s your breathing? We care her so let us know . Take care

Hello,, breathing is still very labored at times..it’s been one thing after another for me..
I’m trying now to get referred out to UT Southwestern.. I was told by a doctor that I’m a medical mystery (I don’t want that title)..but they don’t want to treat me for the autoimmune disorder because of my lungs or my lungs because of the autoimmune disorder..
I really wish someone could tell me what to do or where to go!! Not from one doctor to another.. This can’t just be happening to me..
If I go to Er they say go to your doctor..Then you call doctors office they say if this is a true emergency call 911.. In the meantime I’m in pain that’s uncontrollable and my breathing is very tiring...Now they told me I’m going to be red flagged because I see to many doctors..But I hvnt ask for pain medication.. I’ve just asked them to figure out what is going on and fix it..
If I cld go to Mayo will they address all of my medical problems or just focus on one??

Hello @acid2come, If it's an option for you, I would like to suggest contacting one of the Mayo Clinic locations. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63. Before calling I would prioritize your symptoms so that the most important is first on the list. From my past experience, I can tell you that all of your medical problems will be addressed and that Mayo Clinic departments coordinate scheduling appointments, testing, diagnosing and care. You might also be interested in reading through the following discussion first.

Need Patient's Experience with Mayo Clinic. Is it worth it? https://connect.mayoclinic.org/discussion/need-patients-experience-with-mayo-clinic-is-it-worth-it/

Hope this helps.

@acid2come I would contact Mayo and get your appointment . Explain to them your worst problem first then the rest . They are a good hospital at evaluating and diagnosing a person . If you are near either Fla. Minnesota or Az I would get the appt . I see JohnBishop gave you the information . Let us know when you get the appointment and how it turns out . We care here . Good luck

John, after ten years of pain, last week one night my feet were like ice cubes, not sure if that is "burning" or "freezing" since the symptoms might feel the same. The pain was the worst pain I have ever felt and I have given birth to eleven children some with no anesthetic. I couldn't get the pain under control so I took 2 vicodin, 1 Benadryl and then kept my feet on a heating pad for hours. Is this part of neuropathy? If so, I don't like it very much. 🙂

@maryflorida, It's easy to understand why you don't like the burning pain. I don't think anyone would like it...it's the pits. Neuropathy has a lot of different symptoms and burning or freezing I think are included from what others have described. I just read a recent article that you may find helpful -- What to know about small fiber neuropathy: https://www.medicalnewstoday.com/articles/small-fiber-neuropathy

You mentioned in an earlier post that you had an appointment scheduled with a rheumatologist in early June. Are you able to share how the appointment went or if you found out anything more?

Thank you, John! btw, Happy Father's Day to you! Yes, I went to the rheumatologist and she is running lots of tests.. I don't think I have osteoporosis (that is the first series of tests) since I fell last year and did not break any bones. Three weeks between visits and I am suffering every day as we all are. I'll read the article now. God bless us all.