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Questioning my diagnosis of PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jul 1, 2022 | Replies (18)

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@linda7

I don't know what dose of prednisone you started on or whether you had good relief at 10 mg before. What I do know is that trying to endure symptoms with this disease in hopes that it will get better did not work for me. Also, continuing to taper as the doctor directed when I didn't feel good at my present dose did not work. I'm originally from New England, a long line of tough people, but that way of dealing with things doesn't seem to be effective with this disease. My last flare-up at 7 mg involved stabbing pains under my shoulder blades and similar sudden pains that were impossible to live with, along with more fatigue. I bumped myself up to 8 mg and called the doctor. He bumped me to 10 and that felt like a failure and I didn't want to go that high but now I see that I needed to. I'm going to be much more cautious on the taper next time. I think you need to talk to your doctor and request a trial of a higher dose. Your feeling about what you need is probably right.

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Replies to "I don't know what dose of prednisone you started on or whether you had good relief..."

What an encouraging and supportive response! I do believe that the body does tell us what it needs. I sent an email to doc. Thanks so much!