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Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

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@johnbishop

@suetex, you mentioned you flared a couple of months ago but were doing OK prior to that. When my PMR was active the first few time tapering down I went from 20 to 15 for a month and tried to go down again but the PMR pain came back so I bumped it up half of what I took it down and the PMR pain was gone again at 17.5 mg. From then on I tapered slowly, never more than 1 to 2.5 mg. At the time I was tapering bi-weekly but as I got further along I changed to a weekly taper. My Rheumatologist told me that I should taper based on how I felt and what I could tolerate. I kept a daily pain log along with how much prednisone I took that morning. If my pain was more than a 2 on my own scale of 1 to 10 highest pain, I stayed at the same dose for another few days to see if I could taper down. If it was higher, I bumped my dosage up a half of the previous taper to see if I could still keep it less than the previous dosage.

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Replies to "@suetex, you mentioned you flared a couple of months ago but were doing OK prior to..."

Thank you for your input. I wish my dr. seemed even a little bit that approachable to allow me to set my own pace. When I was doing well, he seemed very content to give me just a few minutes-which was all I needed. Now, things have changed, but he hasn't. When I see him next, I will be very forward and see how he handles it. If he has only one way of handling this disease then he isn't the doctor for me. I think keeping a pain log is a good idea.